Ehlers-Danlos Syndrome app creation

EDS or Ehlers-Danlos Syndrome is a genetic condition with NO CURE, that typically runs through families causing defective collagen in our tissues(Organ, Bone, Muscle, Skin) Its the glue that holds us together but at the same time the lubricant that makes our joints work.  We are often described as double jointed or flexible but it goes way beyond that.  This vulnerability makes our joint susceptible to dislocation,  our skin more easily torn and takes longer to heal or often repeatedly tears open the same wound. It also has major impacts on our Cardio-Pulmonary system (heart and lungs)  and our GI Tract (stomach).

There are 6 versions, all with their own symptoms, my goal is to outline the disorder and the specifics to each version so that when you encounter a medical emergency and cant wait for a Doctor who has dealt with EDS before, you will have access to a resource that can allow the doctor to provide adequate health care and not make a costly medical mistake.  This app will also have the ability to store recently uploaded lab work up/results, CTs, MRIs, X-Rays, EKGs, EEGs and other reports so that comparisons can be made to see if your condition has progressed or not.  Unlike most conditions, without comparison to your most recent vitals, it may look like you are close to death when in fact you are almost normal, FOR YOU.

Due to the severity of my cardio issues related to my EDS Type III I am regularly in the ER and exposed to Drs who have little to no idea what EDS is let alone how to treat or address it.  Which should make me a good test case once the app is created. I hope to use it to inform medical staff of my conditions and complications, procedures (recent and past), tests and results, labs, reports and medication lists and schedules as well as a built in medication reminder, so that no matter what happening  you never miss taking a vital medication.

I plan to initially create the app using the APPLE SDK and once I have a working model I will move to Android and then Surface, to try and hit everyone's needs/preferences.

The funds I raise will go towards paying for the necessary software and hardware on which I will build this program/application. 

Right now I do odds and ends and part time/on the side work to make what little money I do (heck I even do online surveys when I really need the money). With my chronic back pain and cardiac issues, being glued to a desk doing repetitive sedentary and IT work isn't always favorable. But I can however program while sitting, standing or laying down and can really grind out work when I'm inspired but not become overwhelmed while being buried by underwhelming work.  This is something I'm very passionate about,  It took me 25 years to get diagnosed, and if I can play a role in preventing someone else waiting that long for an answer, you better believe ill do whatever it takes.

To those of you that choose to help, thank you. There aren't words to describe what its like to live in an inescapable kind of pain everyday and all you can do is try the best you can to hide it from others and live your life.

Wishing... and for those that accept it praying for you all to be able to find the/a maintainable point where you can smile and laugh (not cause it's expected but because it's how you genuinely feel) and participate in and enjoy life...

-Patch