Let's hope to Muhammad Ali Riza !!!
Therefore, we need our voices to be heard..
My Nephew Muhammed Ali Riza is a spinal muscular atrophy (sma) type 1 patient.
In America, only babies under 2 years
old need to take the gene therapy called zolgensma, which is ten months old and costs 2.1 million USD. This drug treatment is applied in the USA and together with the hospital costs, the total cost is approximately 2.4 million USD. is currently 2 months old and competing against time.
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- Derya Gerede