At 14 weeks and 3 days old he went to bed like any other baby. But at 5am he had suffered heart failure.
Words cannot begin to describe the pain we felt in that moment.
We watched our baby breathless, gasping for air while his heart stopped and paramedics worked to save his life. In that moment I did not think Michael would make it through.
Yet I am so so blessed to be here telling you that he survived!! ❤️ He survived an out-of-hospital cardiac arrest which only 7% patients do!
He was diagnosed with a CARDIAC FIBROMA attached to the septum within the left chamber of his heart. This is so rare that only a handful of patients have ever been diagnosed with this is in the UK.
We are fundraising to pay for surgery which is not available in the UK and unfortunately is not routinely funded by the NHS.
Boston Children’s Hospital, ranked #1 paediatric hospital in the world, has quoted us $147,000 which converts to approximately £116,000 for the procedure. The cardiac surgeons at Boston are *Fact* the best cardiac surgeons in the world and they have done this operation several times. They are confident that they can drastically improve, or even cure, his condition by resecting the tumour.
Please please help us by donating whatever you can to this cause. My baby needs this operation to have a chance at living a normal life. He currently has an internal pacemaker and defibrillator, but this has caused physical development delay and is currently at max threshold, which means it is not working as effectively as it should.
The dream is to get him to Boston as soon as we can.
Every day we worry if it will be our last with Michael. Please help us to get his tumour removed ❤️❤️❤️
***This picture was taken moments after Michael awoke from his coma. The first thing he did was smile at his daddy He truly is our miracle***