Livi's GFPD Conference Fund

From July 17th to July 21st, we are planning to attend our third GFPD Conference.  This year's conference will be in Omaha, Nebraska and Livi will have the opportunity to see several specialists from Omaha Children's Hospital.  Spending a few days with families who live and experience similar struggles as we do creates a feeling of comfort and acceptance that can't be explained.  There will also be a play room set with caregivers where Lila can hang out with other siblings of children with Zellweger Spectrum Disorder.  She always has a great time!  Being able to spend time with our GFPD family means so much to us, and we appreciate any help we get to make that happen.