Help Lincoln Roar: One Rare Boy’s Fight for Justice

Imagine raising the white flag — begging for help for your medically complex child while caring for your grandmother with dementia — and being handed a calming vest and a link to a parenting class.

That’s what we were given.

My name is Brittany, and I’ve been fighting for my son Lincoln since the moment he was born. He has four documented neurological disorders:

Epilepsy

An inoperable brainstem glioma

Sensory Processing Disorder (SPD)

And a rare genetic brain disorder called DYNC1H1

These aren’t buzzwords. These are daily medical needs. This is our life.

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What Lincoln Needed:

A legal multidisciplinary evaluation

A safe, inclusive, medically supported environment

Occupational therapy, trauma-informed instruction, and accommodations

A written safety plan to prevent harm and crisis escalation

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What We Got:

A publicly funded “collaboration” classroom with a lead teacher known for harshness, no special education licensure, and no clinical oversight

A fraudulent IFSP created without a valid evaluation—signed off by a psychologist we’ve never met

Gaslighting, even as Lincoln began to verbalize real fear:

> “I’m scared.”

“The teacher grabbed me and it hurt.”

“Please don’t make me go.”

A “paid spot” coerced as if it were a favor—not the FAPE he was legally owed

Double billing: tuition charged to us, while state and federal funds were likely claimed for services never provided

And finally, a unilateral exit—cutting him off from all early intervention and education services with no legal justification

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They didn’t just deny services—they counted on one exhausted caregiver to collapse before she could fight back.

They bet on my isolation, my poverty, and the overwhelming pressure of raising a disabled child while caring for my grandmother with dementia.

They underestimated us.

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What We're Asking:

We’re raising $20,000 to cover:

✅ $3,600 for a 3-day diagnostic evaluation with Dr. Samango-Sprouse, a leading expert on DYNC1H1 and medically complex neurodevelopment

✅ Legal, documentation, and complaint filing costs tied to our ongoing disability rights action

✅ Out-of-pocket costs for therapy, transportation, and care

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I’ve lost my ability to work. We’ve lost our right to services. And still, we’re trying to survive.

This is not just about one child.

It’s about what happens when a system built to support the most vulnerable instead punishes them for asking.

Lincoln looked to "normal" and ableism and discrimination blocked his legal rights at the most critical time for early intervention for children with DYNC1H1.

If you’ve followed our journey, you know I’ve fought with everything I have.

This is our story how Lincoln Jensen a disabled child was pushed out and I the caregiver was left to burn out quietly by the publicly funded entities tasked with providing services and supports to Oregons most vulnerable children.

I need your help to keep Lincoln and grandma going.

Please share. Please support. Please help us roar back.