Jonny is determined to bounce back from this. With the help from me, he has organized his medications, and takes blood pressure's twice daily and takes his weight daily. They don't want him to gain no more than 5lbs on any given day. To monitor all this internally, we have to take him to get his blood drawn 2 times per week. He has become more in tune with his body, so, talking about urine output and the color of his stool is an everyday conversation. He is on a strict diet. Not only for the Lupus, but, since he has severe swelling, he is not able to have much potassium or sodium. He eats a breakfast without pork products. Is that considered a breakfast??? This has become an overnight, life changing event. And we are dealing with what Lupus throws us one day at a time. He has great family support from his younger brother and sister and me.
I was not prepared for something like this to happen. From a mother's point of view, my worst nightmare has become his reality... daily. He was otherwise a very healthy and fit man. I've been a single parent for all of my kids since they were young. And I have done the very best I can in raising them. Jonny achieved excellence in high school,he graduated with distinguished honors and has been attending Oklahoma University majoring in Biology. He just wants to go to school and graduate. And that he is determined to do. Right now, with his immune system low and other organ complications, going to school is not an option. But hopefully, that status will change, soon. We do not have prescription coverage for Jonny. We are paying for his meds out of pocket. My health insurance out of pocket is $10,000. We have applied for disability and that his pending. I'm confident that he will be accepted and he will start receiving his benefits from that in September. But meanwhile, the out of pocket expense for his medications is a burden. He takes 3 food binders, with every meal. It helps filter out the Phosphate and other proteins that his kidney's aren't able to do anymore. He has a long road of recovery ahead of him. And there is no doubt in my mind that he will beat this and be more educated about his disease and learn to cope so he can maintain a healthy and as normal as possible, lifestyle. I appreciate all the prayers and well wish's from everyone and thank you in advance for your donation. I will keep everyone updated on his progress. Have a blessed and wonderful day!!!
All funding will go towards whatever is necessary for Jonny French. Your donation can range from $1-$1,000 or whatever you are most comfortable with.
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