hope for brayden

hello, i am the father of a 5 month old infant with epilepsy and infantile spasms (is). our sweet baby brayden came into this world nov. 21, 2013. he was rushed to nicu immediately after birth with a fever and an apnea event. we were then told he was hypoglycemic, and was put on iv glucose. after a few days he was able to be weaned off of the glucose, and after several rounds under a uv lamp for jaundice, we were able to take our little boy home. brayden was developing fine, other than having a form of strabismus, and eye muscle condition. then, at around three months, one evening our sweet baby had a tonic-clonic (grand mal) seizure. he was rushed by ambulance to mercy hopital, where he had to endure test after test. ultrasound, ct scan, mri, eeg, blood work, urine screen, and a spinal tap. we were sent home with keppra, an antiseizure medicine, and told it probably wont happen again. then, at four and a half months, he began having infantile spasms. i did some exhaustive research and found that it is a "devestating" type of seizure. now my wife and i have to face the possibility of developmental delays and regression. the goal is to find out the cause, as its not related to his epilepsy. we have an appointment with mercy childrens hospital in kansas city to have genetic testing done, and we face a giant uphill battle. as i am the sole provider for my family of four, i am trying to raise funds to be able to afford to take the time off work to be at the appointments, treatments, etc. and to be able to afford medications and treaments not covered by insurance. thank you for taking the time to read this, and god bless.