Hazel Jayne's Heart

Hazel was born May 19, 2014. We found out several hours later that she had several heart defects known as ToF (tetralogy of fallot) with VSD (Ventricular Septal Defect), absent pulmonary valve, enlarged right pulmonary artery and isolated left pulmonary artery. This means she has no pulmonary valve and will need an artificial valve inserted and replaced every few years via OHS. They will also have to close the hole (VSD), and create a new pulmonary artery to her left lung. She was transported to another hospital, where she was in NICU for 3 weeks. We were finally sent home on a pulse ox machine and we had Echos/ultrasounds and xrays every month to keep an eye on everything until her  surgery.
On oct 7th her right lung became compressed from her right pulmonary artery. She was careflighted to the childrens hospital 3 hrs away where she had open heart surgery just 2 days later on oct 9th. She went into surgical heart block and now is pacemaker dependent. They have given us a time frame of 5 years for pacemaker change and 1 to 15 years for her next ohs. We are still having to see cardiologists every month and now having to travel to the pacemaker clinic (4 hrs away) every 4 - 6 months. We are raising funds to help with the cost of gas to the out of town appts ,  lodging expenses, food, as well as time off work that we will be taking for these appointments and her surgeries. Anything will be greatly appreciated as well as prayers. Thank you.