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Amanda's Hope

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When Amanda was just 12 years old, she was diagnosed with a rare disease called Wegeners granolomatosis.Wegeners or GPA is a rare blood vessel disease. It can cause symptoms in the sinuses, lungs and kidneys as well as other organs. In GPA, organ damage occurs as a result of inflammation.GPA affects the sinuses, lungs and kidneys, but also can affect the eyes, ears, skin, nerves, joints and other organs.This rare disease is estimated to affect 3 out of every 100,000 people. It affects men and women equally. GPA can occur at any age, but most often between the ages of 40 and 65. It is rare in children.For Amanda it affected her sinuses and her eyes end her trachea.she went through 3 chemo rounds as well as numerous biopsies and surgeries.she is on daily steroids that alters her weight. Her battle has been and continues to be a long and hard one. Anyone who knows Amanda knows she's a brave, bright, amazing, determined young lady and we would all love nothing more for her then to have a life filled with fun, and happiness. Amanda is now 14 years old, continuing to battle this disease and so we ask you to team up with us and show Amanda your support so we can all help her fight through this together! all funds go for her medication and after treatment care and frequent trips to the hospital.

Organizer

Connie Stevenson
Organizer

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