Clareeses big ride
Donazione protetta
For those of you that know clareese and for those of you that don't , this beautiful little girl is awesome in her own way others may stop and stare but to us she is amazing. She gets on with day to day life without a care in the world, she comunicates to those closest to her and anyone else won't get a look in, but that's her life.
since a young age we've always known that something isn't quite right with her so after numerous testing and tests are still going on to this day, she has a number of conditions that just make her life that little bit harder than mine and yours.
she has,
deletion of chromosome 12
probable symptomatic generalised epliepsy
fragile X
autism
and a severe learning disability
clareese suffers up to 20 seziures a day and this is tiring in itself when she only sleeps from 10pm untill 3am which also means mum is awake also, it's very tiring indeed
clareese is now 13 and this is the age where all the changes start to take place in her life. She's growing FAST so fast it's becoming a struggle to get her up and down stairs as she is so tall and heavy her mother and brother are her primary carers and they need a little help.
ive set up this page as a target to help them get a stair lift, a wheel chair adaptable bike and also to help build a sensory room at home these things would make her life so much easier and more entertaining.
her mother brother and friends are doing a sponsored bike ride to raise funds along with other charity events planned.
i am working with a few other business owners in town to get some other things arranged with a hope of smashing this target and give this fabulous little girl something to help her along the way.
so if you can donate anything even £1 you are helping us give her a better life and I thank you for already taking the time out to read this.
Much love x
since a young age we've always known that something isn't quite right with her so after numerous testing and tests are still going on to this day, she has a number of conditions that just make her life that little bit harder than mine and yours.
she has,
deletion of chromosome 12
probable symptomatic generalised epliepsy
fragile X
autism
and a severe learning disability
clareese suffers up to 20 seziures a day and this is tiring in itself when she only sleeps from 10pm untill 3am which also means mum is awake also, it's very tiring indeed
clareese is now 13 and this is the age where all the changes start to take place in her life. She's growing FAST so fast it's becoming a struggle to get her up and down stairs as she is so tall and heavy her mother and brother are her primary carers and they need a little help.
ive set up this page as a target to help them get a stair lift, a wheel chair adaptable bike and also to help build a sensory room at home these things would make her life so much easier and more entertaining.
her mother brother and friends are doing a sponsored bike ride to raise funds along with other charity events planned.
i am working with a few other business owners in town to get some other things arranged with a hope of smashing this target and give this fabulous little girl something to help her along the way.
so if you can donate anything even £1 you are helping us give her a better life and I thank you for already taking the time out to read this.
Much love x
Organizzatore
Jyneen Haughie
Organizzatore
