CDLS Conference 2016
Donation protected
I don't usually do things like this and I'm not sure if this will even work. Most everyone knows that my baby girl Samantha has Cornelia De Lange Syndrome (CDLS). Well this is to raise money so that we can take a trip next month to Orlando for the CDLS Conference. At the Conference we will be able to meet with doctors that specialize in CDLS which would be great for us considering most of Samantha's doctors had never seen a child with CDLS before her. Will will also have the chance to meet other families that have children with CDLS. These Conferences are only every other year and we would really enjoy and benefit from being able to go and learn more about Samantha's syndrome and what we can expect in the future. Thank you in advance for your help and if you cannot help please share the page so others can see it.
Organizer
Amber Leigh Jones
Organizer
Theodore, AL