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Help the LaTorre family

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As many of you have heard Baby Zion is currently in the process of being diagnosed with SMA.

Spinal muscular atrophy (SMA) is a genetic condition that causes muscle weakness and atrophy (when muscles get smaller).

SMA can affect a child's ability to crawl, walk, sit up, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing.


Fortunately there is hope. In December 2016,  a new drug, named Spiranza, became the first approved drug used in treating this disorder.


Sadly, the drug is extremely expensive. One dose of the treatment  costs $125,000 and Zion may need as many as 6 doses.

This fund is created in order to help the Lattore family during this difficult time
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Donations 

  • Alison Otwell
    • $30 
    • 5 yrs
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Organizer and beneficiary

Stela Ivanova
Organizer
Chicago, IL
Bethany LaTorre
Beneficiary

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