As you many of you know Baby Jack has been hospitalized since August 15,2017. What was supposed to be a smooth surgery to help him with his sleep apnea turned into a nightmare. His airways were collapsing and they were having a hard time stabilizing him. Unfortunately, he was intubated and sedated till this past Monday the 28th. He relied on the ventilator to keep oxygen going into his lungs. He also had a terrible infection in his lower left lung. This journey was very hard since Baby Jack has a long and delicate medical history. Everything was trial and error. Slowly but, surely we are trying to get him back to baseline.
One of the reasons I made this go fund me was because if it weren’t for the Ronald McDonald House of New Hyde Park I would have not been able to be by my son’s side every day. The Ronald McDonald house is a hotel type of place for families who have very sick children in the hospital or have children receiving a treatment for many things such as cancer, chemotherapy, etc. They give you a room with not one but two full size beds so families can stay together. They have kitchens, family rooms, computers and games for families to use. It’s been such an amazing/sad experience to see so many families together under one roof all for the same kind of reason. To be near our children so we can be with them through tough times. It has been so refreshing talking to families going through a similar situation and comforting one another. I’ve met many families who are from other states and have made many friends with mothers just like me. Dealing with not only Autism but medical health problems. I want to be able to leave them a nice donation because without donations they are not able to run the house. I never really knew about what they did but, let me tell you it’s something truly amazing. For me to be able to go to a nice warm bed at night is what has kept me more sane. No parent should be separated from their sick child.
The second reason for this Go Fund Me is to raise funds to be able to throw my son the birthday he deserves. His birthday is coming up in September and I feel this birthday out of all of them means the most so far. He has gone through some ups and downs. Not everyone knows in detail about his health issues but, one of his main issues is his airway defect. He was born with it and hopefully as he gets older he will get better. His airway defect is the culprit for his recent hospitalization and him having to be resuscitated in July after a sedated brain MRI did'nt go well. Him being in the hospital I have ran into some personal expenses that are not covered under the health insurance. Being a stay at home mom I’ve had to sacrifice and use most funds I had saved for his birthday. It's not the same going from a household with two incomes to going to one single income. I feel like now more than ever my son deserves the mon, sun and stars. I would really appreciate anything anyone can donate.
- cesar castillo
- Stephanie Cruz
- Arianna Guzman
- Ricardo Paredes
- Argita Xheblati
Organizer and beneficiary
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