Aria Manderson: SMA treatment fund.
Donation protected
Our names are Melanie Werdmuller and Michael Manderson.
Last week, we received the devastating news that our beautiful 8 month old baby girl, has Spinal Muscular Atrophy Type 2, a terminal genetic disease with no cure.
Its affects all of her muscles. She cannot sit up, crawl, can barely move her legs and has difficulty holding objects and moving her head due to her weak neck.
We searched online in hope of an answer, and there is a Stem Cell Treatment available in China, India, USA, and Germany.
We have a team of specialists that are helping keep her as strong as possible, however, she will continually degrade her muscles as she is missing 1 of 2 genes that help them function and provide them with nutrients.
We need to raise the money to attempt this treatment in hope to save her. Ray White Real Estate Cessnock have offered to help raise funds, so an account will be opened with them hopefully this week coming.
The funds will be to cover her treatment which is approx- $15500, plus airfares, accomodation, meals and medical equipment we will need when we go overseas.
Her Specialist team from John Hunter Hospital are helping to gether all the information we need to access the treatment, which is the only hope Aria has.
There are proven success stories that it works.
We will update with information when the fund account will be set up and details. If anyone, can even spare a few dollars, eventually it will add up and get as close as we can to our financial goal.
Please help us!
We have a team of specialists that are helping keep her as strong as possible, however, she will continually degrade her muscles as she is missing 1 of 2 genes that help them function and provide them with nutrients.
We need to raise the money to attempt this treatment in hope to save her. Ray White Real Estate Cessnock have offered to help raise funds, so an account will be opened with them hopefully this week coming.
The funds will be to cover her treatment which is approx- $15500, plus airfares, accomodation, meals and medical equipment we will need when we go overseas.
Her Specialist team from John Hunter Hospital are helping to gether all the information we need to access the treatment, which is the only hope Aria has.
There are proven success stories that it works.
We will update with information when the fund account will be set up and details. If anyone, can even spare a few dollars, eventually it will add up and get as close as we can to our financial goal.
Please help us!
Organizer
Michael Manderson
Organizer
