SUPPORT THE CAUSE: RAISING FUNDS FOR A NEW WHEELCHAIR AND MONTHLY INTRAVENOUS IMMUNOGLOBULIN INFUSIONS (IVIG).
Hi everyone, I'm here to ask for help in purchasing a new wheelchair and affording the cost of monthly intravenous immunoglobulin infusions (IVIG) for my best friend Lee Woudenberg Hoeland's daughter. Lee and the Hoeland family are experiencing severe financial difficulties due to overwhelming medical expenses incurred by their beautiful 17-year-old daughter Amanda. Amanda is in need of a new wheelchair. After eight years, she has completely grown out of hers. She also gets monthly IVIG treatments that are very costly. Unfortunately, insurance does not cover all of these expenses leaving Lee and her family with insurmountable financial obligations.
Amanda suffers from a rare chromosomal disorder in which a portion of her 18th chromosome is missing. In a nutshell this disorder has left Amanda with many medical issues and wheelchair bound. Amanda must also wear orthotics and a supportive back brace (which are not completely covered by insurance) due to a 76° curvature of her spine. Amanda also suffers from a primary immune deficiency as a result of her disorder. This means her immune system is extremely weakened. Her body does not produce enough immunoglobulin (IgG) which functions against bacteria and some viruses. When Amanda gets an infection the symptoms and duration are more severe than a person with a normal immune system. In order to help strengthen Amanda's immune system, she receives monthly intravenous immunoglobulin infusions or IVIG administered by a registered nurse that visits her home. There are side effects associated with this IVIG and managed by the registered nurse as they arise. This is a stressful day for Amanda and her family, but all in all Amanda's health has greatly improved over the years due to these infusions. She still gets infections but due to the monthly treatments the duration and severity of these infections has decreased.
Amanda's disabilities and chronic illness have affected the entire Hoeland family. There is always increased worry, stress and sleepless nights. Unfortunately there is a huge stress placed on the family due to the financial burden of medical expenses. The Hoeland's never complain about caring for Amanda and only ever show her a very special and unconditional love.
It would be wonderful to alleviate some of the financial obligations associated with a new wheelchair and IVIG treatments. Please consider supporting Amanda's medical needs as every dollar will make a difference. Lee and the Hoeland family would be deeply touched by your generosity.
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