Help Murat overcome SMA!

Hello, I'm Sevin Özge Zengin - Epozdemir, a lawyer specializing in Child Law from The Hague, Netherlands. I am a family friend and I am raising money for baby Murat who has SMA.
Murat needs very expensive therapy with a drug called Zolgensma. 
Murat is an 11-month-old baby with SMA (Spinal Muscular Atrophy) Type 1.
Type I is sometimes called infantile-onset SMA or Werdnig-Hoffmann disease. Type I begins to affect babies from birth to 6 months, and most babies show signs of illness by 3 months. This is the most severe form of SMA. Spinal Muscular
Atrophy is a genetic condition that causes muscle weakness and atrophy (when the muscles are shrinking). SMA can affect a child's ability to navigate, walk, sit, and control head movements. Severe SMA can damage the muscles used for breathing and swallowing. Most types of SMA are caused by a problem with a gene called the SMN1 gene. The gene does not make enough of a protein needed for normal functioning of motor neurons. Motor neurons deteriorate and are unable to send signals to the muscles.
Although the treatment is very expensive, it is almost impossible to collect the amount they want if we unite
is not.
We want to have this treatment done before we leave Murat to the fate of oxygen ventilators, which will not keep him alive for very long.
There have been incidents where some babies died due to power cuts. Join us on Murat's journey and welcome Murat ♥️

We want you to use your platform to support us! ALL EVIDENCE WILL BE PROVIDED ON REQUEST!

Murat ⬇️ with your surroundings
Speak up and ask them to donate as much as possible, small steps will make a big difference.

One of our lives for Murat, whom we called for support.
join.
Instagram page and donation links in your own stories
share it.
Keep telling Murat's story
meat.
Our Foundation (Help Murat Overcome SMA!)
was established! Your donations will be sent to the bank account of the Foundation. We have asked for a quote at the Utrecht University Medical Center and are waiting for a response. I will share all hospital information as soon as possible.


https://taplink.cc/muratanefesol



https://instagram.com/muratanefesol?igshid=1fafqvi4q0wf5 The mother of the entitled baby is Sakine Koç.