The one consistent thing that comes up over and over in her blood work is high levels of inflammation, but at this time we don't know why or what is causing this.
Currently she has 5 enlarged lymphnodes on her neck, 3 on the left side one of them has she has had since December 2013 and another 2 on the right side that were recently found in April 2014. She had a biopsy on June 13, 2014.
She also suffers from sever joint pain that wakes her up at night, she will be seeing a Nerologst for Muscle testing and has started Physical Therapy.
I left my job to stay home and care for my daughter due to her condition, even though her father, my husband David works a full time job and I have taken on two jobs (approx total of 15 to 20 hrs a week) that I am able to work from home... We are having financial difficulty keeping up with the medical bills and our living expenses.
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"Oh Geez Really!?"
And my blog that give all the details and progess of our little princess Lilly, you can donate here or on the blog...click here for blog ->
Oh Geez Really!?!?
My husband and I are doing something we never thought we would ever have to do... We are swallowing our pride to ask for help.. Financially...
We have provided for our family, we live pay check to pay check, but we have always been able to provide for our family... and now we have hit financial difficulty, a trip to the ER for Lilly cost us over $400, the test after test fees have piled up, all the doctor visit co-pays has thrown us off our budget and now we have to pay for the Surgery Lilly had to biopsy the enlarged lymph nodes in her neck, this will cost us a pretty penny, have not received the bills yet. We also started Physical Therapy on June 5th and she is required to do this daily to strengthen her legs. In July she will see a neurologist and again the visit with a specialist and testing is going to cost us. On top of that we still need to see the oncologist monthly for blood testing to watch her inflammation levels in her blood, testing for other conditions to rule out what it is or isn't and continued physical therapy.
So we are asking you, to please donate if you can... share this post, share our face book account and share the blog with anyone and everyone and see if they are able to donate.
We really appreciate everyone's help and we will keep you all posted on Lilly's progress through our blog.