my daughters name is maddie she has rett syndrome. it has been like a monster invaded my home. but maddie has faught back. now she has an opportunity to see rett specialists at the blue bird institute at balor college in texas. maddie is such a special child that to know her is not only to love her but to have your life touched in a way that is difficult to put into words. we are looking forward to these appointments out there but we also know this is going to be a huge undertaking. we appreciate any help to get us to our goal. we thank you very much!!