Help Sarah receive urgent treatment.

My sister Sarah Warren has recently been diagnosed with Postural Orthostatic Tachycardia Syndrome "POTS". This is a very rare condition which is making Sarah very ill. Sarah is a 32 year old wife, a mother of a beautiful little girl who is almost 3 and has recently found out that she is also pregnant. Sarah has been having symptoms for a little over a year now and recently the symptoms have been getting worse. Postural Orthostatic Tachycardia Syndrome is when your heart rate increases 30+ beats per minute from laying to standing. While lying Sarah's heart rate beats at about 65-80 beats a minute. When she sits up her heart rate increases to 80-120 beats per minute. Upon standing her heart rate can vary from 110-150 beats per minute. This syndrome is a result of a malfunctioning Autonomic Nervous System "ANS". Given her heart rate increases so drastically from laying to standing she has been experiencing the following symptoms; chronic fatigue, weakness, nausea, headaches, anxiety, lightheadedness, occasional vision blurriness, and experience's chest pressure and shortness of breath while standing. Sarah has always been a very outgoing, fun person who is full of life and enjoys doing physical things. Lately she has struggled to have the energy to do the day to day things. Now, due to the increased symptoms Sarah has recently been taken out of work. When Sarah was told that she had POTS she was relieved in the sense that there was a reason she had been feeling the way she was but also scared given she is pregnant and it is effecting her daily life. She wants to be Sarah again and be the Mother, Wife, Employee and person that she knows she can be. Sarah is thankful she has a very thorough family physician and an EP Cardiologist at her work that were able to diagnosis her quickly.

Sarah has done a lot of research to try and find the best treatment for her condition. Although there is no "cure" for this chronic illness, the amazing people at the POTS Treatment Center in Dallas, TX have come up with a program to help people regain their lives and alter the way the ANS responds to postural changes. This is currently the only POTS treatment center in the United States that exists. Sarah is very intrigued by this facility because they don't use medication and they also treat each patient specific to their symptoms, it's not just a generalized treatment. The plan that they have come up with helps to retrain the Autonomic Nervous System by focusing on biofeedback, nutrition programs, physiological stress management, exercise programs, heart rate regulation, as well as counseling. Sarah will need to be there for 2-3 weeks for treatment. Each day she will go through 3-5 hours of therapy. In all Sarah's research she has found most patients feel anywhere from 50-100% better, which is very exciting. Once she has completed the therapy in Texas, the center sends her home with the biofeedback machine for 3 months so she can continue to heal and manage her Autonomic Nervous System, while she is back in her own surroundings.

The total expense of the program is $5,000 with a $500 deposit and the remaining $4,500 due at the first appointment, unfortunately they do not except any type of insurance. Travel for Sarah and to hopefully send her husband and daughter on the weekend, lodging, food, rental car for two-three weeks and supplies are estimated to be another $7,000 or so. Although the expense is great I feel that this is a great opportunity for Sarah to get her life back. We are so appreciative to you for reading Sarah's story and considering helping her get the treatment that could truly be life changing. Any bit of assistance would be absolutely invaluable to Sarah and her growing family. Any excess money raised will go towards continued medical care and expenses.

For more information on the treatment center go to:
www.potstreatmentcenter.com
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Organizer

Alissa Dwight-Blume 
Organizer
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