Savannah, An Angel Worth Fighting For

Savannah Lamoureux is a beautiful, smart, creative and caring 7 yr.old. After a very tough 2 years of her life she was diagnosed with Common Variable Immune Deficiency and had to undergo blood infusion therapy every 3 weeks for 2 1/2 years. After several doctors visits, blood work, biopsies and X-rays she was diagnosed with something new. The first time the doctor sat us down to discuss her disease I think the only thing I heard was "there's no cure", the rest was a blurr, kids get sick all the time, they get the flu, they get chicken pox, she will ALWAYS have this. It's never going away. She's an amazing little girl fighting for treatment and a cure of severe food allergies and a rare disease with no cure; Eosinophilic Gastrointestinal Disorder; Eosinophilic Esophagitis -EoE, Eosinophilic Colitis -EC, and Eosinophilic Gastritis -EG. Savannah's body thinks anything she eats or breathes is a parasite and attacks itself internally. Along with the severe food allergies, there are "triggers" that can cause her to vomit uncontrollably, or stop breathing all together. She has a very small list of things she can eat by mouth.  Savannah has had a Gtube surgically placed in her stomach to feed her most of her meals but unfortunately had it removed due to a persistent infection. She most likely will need a new one and will be on a liquid diet only. No food by mouth. Her doctors here in Georgia can no longer treat her as they do not know enough about the condition so they are transferring her care to the best hospital in the country, Cincinnati Center for Eosinophilic Disorders at the Cincinnati Childrens Hospital in Ohio. The doctors here discovered the disease and has research labs to further learn about treatment. After unsuccessfully treating Savannah close to home her doctors agreed that this is where we need to be. There is a waiting list of over 2 years for some patients, however Savannah's case at this point is so severe her doctors came together and got her an appointment within 6 months. Due to the severity Savannah will have to make this week long trip every 3 months. Unfortunately that adds financial stress to our family and insurance only covers a small percentage for out of state care.  Please help fund Savannah's travel expenses and treatment for Eosinophilic Gastrointestinal Disorder. Thank you and God Bless.