Help Isla with specialised carseat

22670208_15253813970_r.jpegI have set up this page to support and fund various specialised equipment for our daughter Isla who is almost 4. Isla was diagnosed with severe hydrocephalus (fluid of the brain) at 20 weeks gestation. After an mri scan at 1 week old we learned that Isla's brain hadn't developed normally there is parts missing or under developed and has an interhemispheric cyst on top of her brain.This has affected Isla's development which means she can't support herself and is 24 hour care. Throughout and leading up to her first birthday we noticed Islas health deteriorated and more diagnosises were made. Isla had reoccurring chest infections due to an unsafe swallow with liquids and was fitted with a nasal gastric tube she also was diagnosed with epilepsy. During this first year we were told that her life was limited and were referred to robin house hospice run by Chas. Over the next year Isla developed more health problems that went undetected she contracted swine flu and was put into an induced coma for 12 days in which we were told to prepare for the worst. After 12 days our warrior defied all odds and was transferred to the ward. Over the next year Isla spent most of it in hospital with her stomach distending we were then told that her gut motility wasn't great either Feb of 2016 Isla took a prolonged seizure and the rescue medication didn't stop it she then took an allergic reaction to a drug called phenytoin nd stopped breathing and spend a short time again in icu. Where she was then given an ileostomy and gastrostomy feeding tube. Because Isla has been intimated she has contracted pseudomonus aeruginosa a mast bacterial infection that isn't easy to get rid of. Because she is on a continuous milk feed she can't take the antibiotic so has a nebulizer twice a day. Unfortunately this causes big problems with her chest also.  Because of Islas complex needs all the equipment is so expensive although we are lucky to receive equipment like a specialised seat and a hospital bed from our healthcare team. But anything else we have to fund ourselves. Isla would benefit from a specialised car seat from jcm called a carrot car seat this means that family and friends can use to transport us and we don't have to rely on private hire wheelchair cabs which cost a small fortune. Isla has numerous appointments at various hospitals and sometimes early in the morning and most of the wheelchair accessible cabs have school contracts. Both myself and her dad are going to learn how to drive and gain our license but until then family and friends can transport us to and from appointments or even take us on days out. I really appreciate taking your time out and reading this.  Everyone who knows and has met Isla knows what great gorgeous girl with her own wee personality altho she is non verbal we know what she needs and wants by her having different noises and touch. Thanks again for taking the time to read this  Kate,Derek and Isla xxx


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Kate Weir 
Larkhall, Scotland, United Kingdom
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