Brookies Transverse Myelitis Treatments
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Welcome Everyone! We are so glad you have visited our page.
Brookie has come such a long way from where she was at 15 months old in September 11, 2012. She is now 2 and a half! Back then, she was laying in a hospital bed and couldn't move from the neck down. We were scared for her life and didn't know what was wrong. She was diagnosed with Acute Idiopathic Transverse Myelitis. Since that diagnosis God has been working miracles. Brookie has gained back full movement from mid stomach up. She has been going to therapy between 3 and 5 days a week since October 2012 and seen countless numbers of doctors and specialists. Unfortunately, she has very little movement in her legs and she is still incontinent. We have not seen any drastic improvement in months and have been told by many doctors that this is about as good as she is going to get. We are not ready to settle for "as good as it will get"! We feel like there are more options out there for our daughter to try and are ready to start pursuing those options. Sadly many of these options include treatments that are not covered by insurance and we will incur costs for travel, hotel, etc.
The first treatment we would like to try is Hyperbaric Chamber treatment. It has been shown to help people that have spinal cord damage like Brookie's. Because it is not covered by insurance we are taking on the cost ourselves. The first round will be 40 treatments. Each treatment is $140 and we will be doing 2 a day for a month.
We would really like to get Brookie into the Kennedy Kreiger Institute in Baltimore Maryland. They are doing cutting edge treatments on patients with Transverse Myelitis and we would like to see what they can do for Brookie. Some of this will be covered by insurance but a large portion will not be covered. Including airfare, hotel stays, time off of work, childcare for our other children etc. The cost for Kennedy Krieger will be in the few thousand dollar range when all is said and done.
We still need a few items for Brookie's home physical therapy. She needs a treadmill, a special exercise bike, and a few custom made balancing/stretching tools.
Brookie is supposed to go visit her doctors in Seattle and her doctors in Dallas every 6 months. This cost has been too much for our family to take on ourselves so she is a little behind in her visits to them. Your donations would help her to get to these important visits.
Lastly, there is a Transverse Myelitis family camp in Kentucky every summer. The cost of flying our whole family down there and taking a week off of work is huge for us. We would love to go down there and meet other families that are going through the same things our family goes through. There are also doctors there from all over the country that have sessions on the research they are doing and treatments they are trying. It would be a huge blessing for our family to attend this summer.
All these costs added up are around $15,000 to $20,000. With some costs reoccurring every few months. Brookie's daddy has just taken a job working in the North Dakota oilfields to help pay off this debt and pay for some of these expenses. We are going to miss him but are so proud that he is willing to work so hard to take care of our family and all of these expenses we have. As Brookie's parents we will not stop until we know we have tried everything we can to get her well. It is hard to take on all these costs on our own and we are ready to reach out to you for help. Even if you can't help financially if you could be praying that God keeps working miracles in Brookie's healing we would be so grateful. She has come a long way since her initial diagnosis but she still has a long way to go.
God bless you in advance for your prayers and donations.
The Gossard Family
P.S. We plan to post more videos and pictures of Brooklyn and her progress as this builds.
Here are some links to help you learn more about Brookie's condition and some of the things we need funds for.
Transverse Myelitis Association Website: http://myelitis.org/
Info about TMA Family Camp:
http://myelitis.org/education/camp/
Hyperbaric Chamber Info:
http://www.spokanehyperbarics.com/contact.html
Kennedy Kreiger Institute:
http://www.kennedykrieger.org/patient-care/patient-care-centers/international-center-spinal-cord-injury
Saint Lukes Physical Therapy: (Where Brookie goes a few times a week for therapy)
https://www.st-lukes.org/Pediatric-Services/
Brookie has come such a long way from where she was at 15 months old in September 11, 2012. She is now 2 and a half! Back then, she was laying in a hospital bed and couldn't move from the neck down. We were scared for her life and didn't know what was wrong. She was diagnosed with Acute Idiopathic Transverse Myelitis. Since that diagnosis God has been working miracles. Brookie has gained back full movement from mid stomach up. She has been going to therapy between 3 and 5 days a week since October 2012 and seen countless numbers of doctors and specialists. Unfortunately, she has very little movement in her legs and she is still incontinent. We have not seen any drastic improvement in months and have been told by many doctors that this is about as good as she is going to get. We are not ready to settle for "as good as it will get"! We feel like there are more options out there for our daughter to try and are ready to start pursuing those options. Sadly many of these options include treatments that are not covered by insurance and we will incur costs for travel, hotel, etc.
The first treatment we would like to try is Hyperbaric Chamber treatment. It has been shown to help people that have spinal cord damage like Brookie's. Because it is not covered by insurance we are taking on the cost ourselves. The first round will be 40 treatments. Each treatment is $140 and we will be doing 2 a day for a month.
We would really like to get Brookie into the Kennedy Kreiger Institute in Baltimore Maryland. They are doing cutting edge treatments on patients with Transverse Myelitis and we would like to see what they can do for Brookie. Some of this will be covered by insurance but a large portion will not be covered. Including airfare, hotel stays, time off of work, childcare for our other children etc. The cost for Kennedy Krieger will be in the few thousand dollar range when all is said and done.
We still need a few items for Brookie's home physical therapy. She needs a treadmill, a special exercise bike, and a few custom made balancing/stretching tools.
Brookie is supposed to go visit her doctors in Seattle and her doctors in Dallas every 6 months. This cost has been too much for our family to take on ourselves so she is a little behind in her visits to them. Your donations would help her to get to these important visits.
Lastly, there is a Transverse Myelitis family camp in Kentucky every summer. The cost of flying our whole family down there and taking a week off of work is huge for us. We would love to go down there and meet other families that are going through the same things our family goes through. There are also doctors there from all over the country that have sessions on the research they are doing and treatments they are trying. It would be a huge blessing for our family to attend this summer.
All these costs added up are around $15,000 to $20,000. With some costs reoccurring every few months. Brookie's daddy has just taken a job working in the North Dakota oilfields to help pay off this debt and pay for some of these expenses. We are going to miss him but are so proud that he is willing to work so hard to take care of our family and all of these expenses we have. As Brookie's parents we will not stop until we know we have tried everything we can to get her well. It is hard to take on all these costs on our own and we are ready to reach out to you for help. Even if you can't help financially if you could be praying that God keeps working miracles in Brookie's healing we would be so grateful. She has come a long way since her initial diagnosis but she still has a long way to go.
God bless you in advance for your prayers and donations.
The Gossard Family
P.S. We plan to post more videos and pictures of Brooklyn and her progress as this builds.
Here are some links to help you learn more about Brookie's condition and some of the things we need funds for.
Transverse Myelitis Association Website: http://myelitis.org/
Info about TMA Family Camp:
http://myelitis.org/education/camp/
Hyperbaric Chamber Info:
http://www.spokanehyperbarics.com/contact.html
Kennedy Kreiger Institute:
http://www.kennedykrieger.org/patient-care/patient-care-centers/international-center-spinal-cord-injury
Saint Lukes Physical Therapy: (Where Brookie goes a few times a week for therapy)
https://www.st-lukes.org/Pediatric-Services/
Organizer
Allison Gossard
Organizer
Spokane, WA
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