Carter, 4, with rare AFM

My name is Melanie, my sister is Robin Roberts, from Virginia, her son Carter contracted what they thought was meningitis over eight weeks ago and was in the PICU relying on a vent as means of support. After initially being sent home while seeking treatment for feeling ill, he later was taken to CJW Medical Center in Richmond, Virginia, where he was admitted and later diagnosed. Treating the the virus he had  proved to be successful however in this time frame he developed pneumonia causing his lungs to collapse, respiratory distress, and two procedures were performed to try to help correct the issues. Carters condition is vey rare, he had developed what they thought was ADEM causing paralysis in all four limbs and was dependent on his ventilator. Robin and her husband Chris reached out for a second opinion at their own expense. Doctor's at VCU and Boston Children's Hospital all agree Carter's diagnosis is AFM. It is very rare and there is no cure. All requested documenation has been sent to the CDC for further review. Carter now has a tracheotomy and is needing long term inpatient rehabilitation as well as adaptive equipment, this what we are raising funds for.

Unfortunately though with two other children to care for everyday expenses, not to mention hospital care, the long term care as well is exceeding their means. Any and all help is appreciated and will help give Carter the care he needs to hopefully one day return to the sweet, active boy who loves pandas!

Another link to a site is available as well for contributions, getting  the word  out is so important in meeting our goal! http://www.plumfund.com/medical-fund/carter-roberts

https://m.facebook.com/CarterRobertsCoalition/

Photos and journal entries available at:
https//www.caringbridge.org/visit/carterroberts
 ‌ Thank you in advance for all love and support!!!