Help Enzo To Have Pain Free Future
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My son`s name is Enzo and he is super funny, kind and caring 2 year old boy. 6 months ago he started to have very strong headaches few times a day which were very concerning. We got referral to hospital and there we got diagnosis of Chiari Malformation Type 1, meaning that his back brain 8mm is sliding into his spinal channel. This is very rare chronic brain disorder which affects children and adults and it comes with horrible side effects. Those would like to know more here is the link to this condition.https://www.nhs.uk/conditions/chiari-malformation/
The only treatment in the UK which is offered is very intrusive brain surgery which removes part of the back skull but that does not cure it, it just offers release of some of the symptoms. Luckily for us, there is a treatment offered in Spain in the institute which does research in Chiari and has great results significantly improving the condition without the brain surgery. The procedure is 45 min long and recovery 2 days instead of brain surgery in the UK – 4h surgery and 3 months recovery. Please see the link for more information. https://institutchiaribcn.com/en/diseases-we-treat/arnold-chiari-syndrome/
Since the Spanish treatment is done privately the costs of it is more than £20,000 which will be funded by our savings, loans and hopefully by generosity of our friends and colleagues. If you are able to help with anything, please do. We will be super grateful for every donation!! Please help to give our son pain free future. ❤️
Thank you so much! Regards, Sinta
The only treatment in the UK which is offered is very intrusive brain surgery which removes part of the back skull but that does not cure it, it just offers release of some of the symptoms. Luckily for us, there is a treatment offered in Spain in the institute which does research in Chiari and has great results significantly improving the condition without the brain surgery. The procedure is 45 min long and recovery 2 days instead of brain surgery in the UK – 4h surgery and 3 months recovery. Please see the link for more information. https://institutchiaribcn.com/en/diseases-we-treat/arnold-chiari-syndrome/
Since the Spanish treatment is done privately the costs of it is more than £20,000 which will be funded by our savings, loans and hopefully by generosity of our friends and colleagues. If you are able to help with anything, please do. We will be super grateful for every donation!! Please help to give our son pain free future. ❤️
Thank you so much! Regards, Sinta
Organizer
Sinta Pereira
Organizer