Evelynn Marie

Our daughter Evelynn was born on August 4th, 2018 5 weeks premature and she was also born with a birth defect called Gastroschisis. Her bowels and intestines were born outside of her body through a little hole in her abdominal wall. According to the CDC, less than 2,000 babies per year are born with Gastroschisis and it has about an 83-97% survival rate. As soon as Evelynn was born, she was rushed into surgery to put everything back in her stomach. Since then, she has been living in an incubator in the NICU. She is unable to eat, getting all of her nutrition through a PICC line, which is an IV that goes through her vein and into the right atrium of her heart. She has had many problems with this line, resulting in 3 blood clots through out her little body. Because of the clots she now has to receive a blood thinner in the form of a shot twice a day for the mext 6 weeks. Its an ongoing fight everyday. My girlfriend and I live and work about a hour and a half away from the hospital, so I make the drive everyday each way so I can be there with my daughter. We are currently staying in a hotel in which I take the car to work and she with her son takes the bus to the hospital each morning. We have been here for about a month now with news that we are not close to getting out the door. On top of everything we also understand that the world still goes round and things have to be taken care. The stress financial have started to take its toll, and I am here swallowing my pride because we are in need of help. Any money raised will go towards her medical bills as well as lodging. We were looking to get housed at the Ronald McDonald house but the waitlist is incredibly long. Unfortunately we've had to stay at a hotel that's $400 a week. We greatly appreciate any donations, share of this post, and just general support. Thank you for your time and  have a blessed day.