Ava Orsini

Ava is my best friends daughter she was born at 32 weeks due to being a mono mono twin. She had a congenital heart defect vsd (hole in heart). Her first week of life she contracted a disease that attacked her intestines called nec. The doctors removed 90% of her intestines which had died off from the disease. leaving her with short bowel syndrome (a syndrome where she doesn't absorb nutrients like the rest of us through her intestines). She now has a central venus line where she is dependent on tpn. Ava had open heart surgery in april 2011 where they closed the hole and has had 2 heart surgeries and 2 abdominal surgeries so far, along with many other procedures. Tomorrow she will recieve a new central line and a g tube. Please help donate for her medical expenses, hospital stays, etc. This family has been traveling to Boston from CT for years to get Ava treatment, and now they are residing part time in the city to be close to their daughter. The cost of travel, food, parking etc has weighed heavily on the Orsini family and the bills continue to rise. Any donations contributed will be so greatly appreciated, and we know Ava deserves all the help any little girl deserves. Thank you all in advance for your kindness and generosity!
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  • Kristen Basile 
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  • Bob & Donna Kologe 
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  • Katerina Mouzas  
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See all

Organizer

Mandy Bonacassio 
Organizer
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