Help Benny Fight Motor Neuron Disease

Hi, We are Benny's family. Daughters, partner, grandchildren & friends.

In late of August 2022 our world & hearts were shattered. My Dad was cruelly diagnosed with Motor Neuron Disease, for those of you that don't know this disease is terminal, cruel & progressive with some ending in wheelchairs unable to eat, drink, talk and needing assistance to breathe.

Benny is the kindest man you will ever meet with a heart of gold & up until May of 2022, our dad was active, working, golfing, playing darts, playing with grandchildren and getting ready to retire so this came as a massive shock to us all.

Fast forward a few months and Dad is slowly & cruelly deteriorating before our eyes. This is unbelievably heart breaking for him & for us to watch.

A proud man now needing his amazing partner's help every day for simple tasks we once took for granted, calling his children for help when all he wants is independence.

Dad's speech is getting slower, his arms are slowly getting weaker, his lungs aren't as strong and his independence is being ripped away.

We are here for help, as a family, we want to provide Dad with everything he deserves but the costs are so far out of reach.

There may not be a cure for MND but some people are lucky enough to live for years. With treatments and aids we hope to reduce the impact it has on Dads daily life.

Our wish for 2023 is time & this fundraiser can provide our Dad with some more independence. This is the start of our campaign to raise funds so that Benny can live in comfort.

This support could help in many ways. If enough can be raised between your support, housing adaptation grants & our own saving we hope to add an extension to Dad's current home to support downstairs living. This would include a wheelchair accessible bedroom & bathroom. We know this would be a huge target but we are determined to give him the best. If we fall shy of what is needed these funds will still be used to modify his current home by widening doorways, adding a downstairs shower, installing ramps & safety rails & possibly changing the layout.

Funds are also needed for equipment, travel for clinical trials & day to day travel to appointments as Dad can no longer drive. Weekly physiotherapy & other forms of treatment are also a priority. The list & the costs are endless. If we could exceed this target that would be AMAZING.

Thank you for taking the time to read our story & we would be grateful if you could help us spread the word.

Yours in health.

The De Luca Family