Care for Claire Bear

I'm the dad of a two month old child with end stage renal failure. She has been on peritoneal dialysis for three weeks and a ventilator since she was born on July 17th. She has auto recessive poly cysctic kidney disease, which stopped the production of pee/amniotic fluid gestationally at 29 weeks and this really inhibits lung growth. She is in a fight for her life in Boston while our home is three hours away. We are racking up the bills travelling between the two cities and supporting two places to stay. This is very difficult as we have a four year old that is just starting preschool and I still need to work. I'd greatly appreciate any help in deferring costs in our travels.


The only reason I'm not completely overwhelmed with everything right now is because this same thing happened with my second child as well and it was too much for him to survive. He lived in the NICU for two months.

Thank you for reading my story.