On Tuesday I found out I have Myofibrillar Myopathy a genetic muscle disorder that is untreatable at the present time! (a form of Muscular Dystrophy) Yesterday was my 56 Birthday and if my Friends, Family or complete strangers can find it in their hearts to grant me one wish I will be forever grateful!
I would like to be able to take my 15 year old daughter Teeghan for a vacation back to Ontario while I am still able to walk and not a burden on my daughter, friends and family!
My daughter has not seen her uncle Ron (other than a couple of pictures) since I took her to my father's funeral in 2002 when she was 9 months old!
I would love for her to meet my old friends whom I haven't seen in 25-35 years more or less!
With a heavy heart I will be celebrating the 3rd anniversary of my mother's passing on July 8th!
I am so proud to have been raised by a wonderful lady and to know that her spirit is in a peaceful place for eternity!
God Bless you Mom
If you are in a financial situation to help I will be forever grateful!
- Gordon Neuser
- Dave Plant
- Peter Pflug
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