We can all be part of Deas chance to live. With treatment she has a good chance to survive. Actually children with Down syndrome has a better chance of surviving leukemia than other children.
But to survive Dea urgently needs treatment. She lives in Kosovo. She is currently a pasient in Pristina University Hospital. She gets blood transfusions to prosphone the effects of leukemia. But her only chance of surviving is longlasting treatment to cure the leukemia. In Kosovo, they can not provide this for her. She has to be treated abroad and her family has to arrange for the treatment and pay the expences themselves. They have aplyed for the government funding available in Kosovo. But it`s uncertain if and when they will receive this funding. And if received the funding will only cover part of their expences.
Dea is a blessing and only child of her parents Florentina and Armend Nikqi. They are fighting desperately to find a hospital for Deas treatment and to raise funding to pay for her treatment. Deas father created this Gofundme page in august when she first got ill. As Dea got worse he reached out to different Down syndrome organisations, asking for help. Armend does not speak english, but with the help of friends translating og translating tools he is doing his very best, trying to save his beloved daugther Dea.
Armend reached out to the facebook group of an organisation in Norway called Norwegian Network for Down Syndrome (Norsk Nettverk for Down syndrom). He connected with us, who are now telling you Deas story. She has touched our hearts. As mothers of children with Down syndrom we feel the despair and pain of this little family and feel compelled to take action.
To make sure Deas story was true, we urged Armend to send us documents verifying the information he gave us. We received copys of their passports and Deas birth certificate. We contacted the organisation Save the children, Kosovo and Cure 2children. On our behaf theese organisations made contact, by phone and mail, with Deas doctor, Dr. Badhyl Abrashi, in Pristina University Hospital. They all confirmed the information given by Armend. The doctor has also mailed copys of the papers of her diagnosis, referrel to treatment abroad and other hospital papers.
Certain that Deas heartbreaking situation was real, we have organized a larger group of mothers of children with Down syndrome, dedicated to help saving Deas life. Since she was diagnosed we have worked together with Armend researching and contacting possible hospitals for her treatment. Trying to raise attention through facebook and media. And trying to raise money to pay for Deas treatment.
Our work is ongoing. We are awaiting replies from several hospital and hoping Dea will travel to a hospital as soon as possible after the easter holidays. But we do not yet know where and how. And funding is urgently needed to make this happen!
Deas chance to live depends on all of us. Please donate. Please give her a chance.
Please contact us if you have any questions, have suggestions for hospitals to contact, or wich to get more involved in saving Deas life.
Thank you so much for reading.
Armend and Florentina Nikqi
Deas facebook profile:
Facebookpages for support to Dea:
Working group of mothers on facebook:
Some of the most active mothers:
Monica Hennum Steen https://www.facebook.com/monica.h.steen
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