Layla Pearl Medical Fund

My wife and I were looking forward to having a baby after she had a miscarriage on October 9, 2016. My wife Brittany had gotten pregnant again with an expected due date of July 15, 2017 but that unfortunately did not happen. On February 24, 2017 (the day before I had to leave for 2 weeks of military training in Florida) we had gone to our OB/GYN to find out the gender of our baby which was an exciting time, but unfortunately for both of us that did not happen. We were told that our baby had what is called an omphalocele. We were referred to Children's Hospital of Philadelphia for further testing which was not able to be completed until I returned from training on March 13, 2017. My wife and I spent 9 hours at CHOP having MRI's, CT scans, genetic testing, cardiac ultrasounds, ultrasounds, and genetic specialists consultations only to find out that out baby had OEIS Complex which is (Omphalocele, Exstrophy of the cloaca, Imperforate anus, and Spine abnormalities) and is a rare defect with estimated incidence of 1 in 200,000 live births. Most cases are sporadic, with no obvious cause. The worst part about this medical condition is that my wife and I had to make the choice whether to have the baby live and go to full term with a high risk in infertility for my wife or to terminate the pregnancy at 25 weeks 4 days because the baby had less than a 2% chance to make it outside of the womb and if she did she would be on machines her entire (short) life and only last 2-7 days outside of the womb. Unfortunately with our insurance, the charges for these services are not covered because it is considered out network even though we had no other choice but to go to CHOP for treatment and possible delivery leaving my wife and I in a huge financial hole. The medical bills racked up to $10,000 and my wife and I got nothing in return but an empty hole in our hearts. Please find it in your hearts to help us both through this trying time.


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Matthew Nettles 
Reading, PA
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