Help Us Keep Kenadee Safe

On April 2nd we welcomed little Kenadee to the world and she instantly melted our hearts with her sweet charm. At first she appeared to be a happy healthy newborn but within the next few weeks, we noticed her gradually getting weaker and her breathing became really shallow, which alerted us that something wasn't right. After a week of tests, doctor visits, and lots of running to and from Primary Children's Hospital; we learned that Kenadee has Spinal Muscular Atrophy type 1. A rare genetic disease that robs people of there ability to move, eat, and breath on their own. Killing most babies by the age of 2. It was devastating news for us and our family. Kenadee was approved for Spinraza, the first ever FDA approved treatment for SMA and received her first dose on May 9th. We have seen amazing improvements over the last month and remain hopeful that she'll have a bright future. That being said we still need to make a few accommodations in order to keep her safe. One being a van to give us room for her special car bed and respiratory machines and the second being our own apartment so we can keep her away from anyone who is sick. A respiratory illness can be fatal to SMA babies and right now we live in a shared house with school age children, who are exposed to seasonal flus. If you feel compelled to help, just know that we are so incredibly thankful and all funds will go towards Kenadee and her well being. ❤️ Thank you