ELYSESTRONG

I am asking ALL OF YOU for help! None of us like to think that our children could be affected by disease... I have been thrown into a very rare autoimmune disease Castlmens disease and Paraneoplastic Prmphigus are 2 diseases that my otherwise healthy daughter has been diagnosed with. Being told "we just don't know" "we wish we had more answers" is the worst thing you could be told when it's a child's life. Being in the hospital for the last 5 months and meeting families and seeing for the first time really how many kids don't have answers to how their life will play out breaks my heart! My baby wants to live and has fought so hard! I feel like if there is anything we can do to raise money to bring these kids some happiness and help these institutions research more about how to help or what can be done we should! So I'm asking you all to donate just because research and life matters! It might not get us a cure but it might make the next step possible... When my baby goes home we will host an event in hopes of raising more awareness of these rare disease's that anyone can be affected by without notice. And they really are life changing. There will be posts to follow or feel free to email me if you would like to be involved or sponsor the event. "Being beautifully bald" will be out first event. Date to follow.