Hi all, I am currently without insurance as I lost my parents coverage when I turned 26. I am in the process of trying to get approved for disability but as you know that takes years. I do not qualify for state Medicaid, and in the meantime I am without care. I have been diagnosed with Gastroparesis (a paralyzed stomach), Intestinal failure, endometriosis, PCOS, seizures, urinary retention, high blood pressure, acute livery failure, acute kidney injury, intestinal cystitis, pelvic floor dysfunction, malnutrition and so much more. I am unable to work due to make being in and out of the hospital so often hence why I am applying for disability.
With all this being said I am in need of TPN, total parental nutrition also. I am currently tube fed through a surgical feeding tube but now with being in intestinal failure, I am unable to fully absorb the feeds and nutrients through my small intestine and my doctors and I have decided receiving nutrition through my central line into my heart is best for me at this moment. TPN is incredibly expensive and without insurance, it is almost impossible to pay for and many DME and infusion companies will not take self pay patients so anything helps while I’m awaiting to be approved for disability.
I recently posted a tiktok that went semi- viral and some people suggested I make a go fund me to support some of my medical needs and necessities such as tube feeds, tube feed supplies, medical funds, and possible TPN. Anything helps or just prayers are also appreciated! Thank you guys so much






