Kylee's Diagnosis
Spende geschützt
Recently we have found out what Kylee may have Bohring Opitz Syndrome. It is a very rare congenital disorder, there are only about 30 known cases in the world. We have contacted a geneticist in California which agrees that Kylee has this disorder but has advised us to have her and us tested. The test for this is currently only available in Europe and is a little over $1000. This would open up so much to know her medical diagnosis.
Organisator
Tiffany O'Shields
Organisator
North Augusta, SC