Ilya Shakhov SMA TYPE 1

Hello My Saviors,

My name is Ilyusha Shakhov. I was born on February 26, 2020.

I have a mom, dad and a sister. I love them very much. ❤.

Unfortunately I'm sick and don’t have much time. My time is running out as new borns like me don’t live past age of 2. I have spinal muscular otraphy (SMA type 1). 

Mom says that only one shot of Zolgensma can save my life, but it is very expensive!

I cannot do this without you my Saviors . 

Please, help me stay with my family. 

Amount to collect is $ 2.2 M

May God Bless you for your help to stay with my family. 

Amen

Please help as much as you can. This little boy was diagnosed with SMA TYPE 1, 

He is residing in Russian Federation where currently there is no cure available. There is only one drug which was developed by Novartis called Zolgensma which can save Ilya. All the documents for these donations as far as medical records are available. 

The current collection is going in few countries which is Russia Federation, Germany and now USA. 

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