Helping Lydia love life

Lydia was born weighing 1pound 1ounce and 11inches long. She spent 171 days in total at two different NICU'S. Through our NICU journey we learned that Lydia was missing her cerebellum, has a very thin brain stem and has significant damage to the ventricles in her brain. Miss Lydia also suffered a stroke at birth causing further damage to her tiny brain. 

We've since been given the diagnosis of Dandy-walker malformation, cerebral palsy, chronic lung disease and silent aspiration. Talk about a lot for one little girl to handle right!? Lydia sails through it all like a champ. She never fails to have a smile on her face or hesitate to give high fives. For her each day is a gift and she wants to live it just like any other five year old! Running around (or in her case rolling) and driving her brother crazy. 

Because of so many of Lydias health issues she is in the hospital quite often at SSM Cardinal glennon. There she see's over 10 specialists including but not limited to Pulmonology, urology, neurology, cardiology, gastroenterology, nephrology, infectious disease, Opthalmology, ENT and many more. 

Now Lydia is pretty tiny for a five year old, she weighs just 30lbs and is 40in tall, but we know that with time she will only get bigger and stronger! We are hoping to use this platform to raise funds to purchase a vehicle that is suited to Lydias needs, such as her wheelchair and special needs car seat. If anyone should ever have any questions about us or Lydias journey please feel free to reach out.      

Sincerely- The Kruger's