Wheelchair lift for Poppy
Donation protected
This is our daughter Poppy. She was born with spina bifida and hydrocephalus. When she was a few months old she had to have major brain surgery to stop her brain slipping out of her skull and putting pressure on her spine. Due to this she also has a tracheotomy (a tube permanently in her neck) to allow her to breathe. She is paralysed from the waist down and also has nocturnal epilepsy (she has seizures in her sleep).
When she was 3 we had an extension built onto our house for a specialist wetroom etc. We asked numerous times for a lift so Poppy could have her bedroom upstairs with the rest of her family but it was refused. Never mind the medical safety reasons for needing her close to us (the seizures and the fact we need to help her maintain a safe airway) but we felt that she had a basic human right to be treated like the rest of the family. To not be singled out in her own home for being different. To allow her the independence to play upstairs with her sisters, have sleepovers with them. Not be made to feel more different than she already did by making her sleep downstairs. Alone.
We don’t have carers or a care package. It’s just me and my husband who do all her care.
We were constantly refused access to a lift by our local trust and after years of fighting we gave up and decided to purchase a second hand lift privately.
Unfortunately it came with no warranty as it was second hand and it has broken down consistently since it was installed a few years ago. It’s finally broken down again and it couldn’t have come at a worse time. Weeks before Poppy is due to go into hospital for 2 surgeries.
We decided that we couldn’t keep repairing it. It’s not safe for Poppy and we can’t continue to carry her up and down the stairs.
Our local trust still refuse to install a lift so it’s up to us again.
The cost of a new lift starts from around £8000.
We will be saving money ourselves towards it but it’s a huge cost. Any amount you could donate to help would be much appreciated. We just want Poppy to live a full and independent life at home and her lift is a massive part of that.
Organizer
Martina Ferguson
Organizer