Jo Jo's (Josiah) Journey
Donation protected
Welcome to Josiah's Journey! We appreciate your support and words of hope and encouragement. Thank you for visiting.
On Monday October 7th, 2019 Josiah was diagnosed with a form of Leukodystrophy which is a progressive and incurable genetic disease. We received results on November 25, 2019 that he has H-ABC type of Leukodystrophy which is the rarest form. Josiah is 1 of 72 cases in the world.
He is currently being seen at DuPont and now by the CHOP Leukodystrophy experts. We are grateful to live to close to Philadelphia as other children travel from countries around the world to be seen at CHOP.
We started a GoFundMe page as people have been asking how they can help Josiah. Josiah is receiving services through early intervention and outpatient therapy but will have other medical equipment and home modification needs. Morgan is home with Josiah 24 hours per day and is unable to work because of the type of care he needs.
Thank you to friends and family for your support and prayers as we learn about ways we can support Josiah's Journey.
On Monday October 7th, 2019 Josiah was diagnosed with a form of Leukodystrophy which is a progressive and incurable genetic disease. We received results on November 25, 2019 that he has H-ABC type of Leukodystrophy which is the rarest form. Josiah is 1 of 72 cases in the world.
He is currently being seen at DuPont and now by the CHOP Leukodystrophy experts. We are grateful to live to close to Philadelphia as other children travel from countries around the world to be seen at CHOP.
We started a GoFundMe page as people have been asking how they can help Josiah. Josiah is receiving services through early intervention and outpatient therapy but will have other medical equipment and home modification needs. Morgan is home with Josiah 24 hours per day and is unable to work because of the type of care he needs.
Thank you to friends and family for your support and prayers as we learn about ways we can support Josiah's Journey.
Organizer
Jody Shank Pierce
Organizer
Norristown, PA
