Miracle Madden
Our miracle Madden came into this world crying and screaming, which is normal for most babies, but this is something we were told Madden would never do. Just like his brother Jake, we were told Madden would not live long after he was born because of a very rare genetic condition. Well, Madden has a way of proving doctors wrong and on May 25th, did just that. Madden has a rare condition called Jeunes Syndrome http://www.seattlechildrens.org/medical-conditions/chromosomal-genetic-conditions/jeune-syndrome/ and due to its rarity the doctors are unable to treat him at our local hospital. He likely needs multiple chest expansion surgeries called the VEPTR procedure. The specialist that has agreed to see him is located at Children's Hospital of Philadelphia (CHOP) and we will be traveling there very soon so he can finally be evaluated by the experts. The costs associated with having a child with special needs are extraordinary. Many people have asked how they can help and for now this is the best way to help Madden and our family get to the doctors who can help him. We appreciate all of the amazing support we have received from friends and family. Thank you so much in advance for helping our little guy get the help he needs to continue the fight!
