3 zebras need proactive care

$9,235 of $25k goal

Raised by 70 people in 39 months
Elizabeth Alden   GALESBURG, MI
Elizabeth had all the typical symptoms of Ehlers-Danlos syndrome, up until she was injured during a car wreck in 2011. Since the accident, she has lost three discs in her neck, gained scoliosis, lost most of the cartilage that holds her ribs to the sternum and some to the spine. Her body will not produce collagen, so it's not healing and the break at her sternum is pinching off her upper intestine, lung and most of the nerves on her right side... Given the severity of her symptoms, it's nearly impossible for her to perform even the simplest of tasks. Please, help spread this message far and wide! Share her story through Facebook and follow her progress at:
https://www.facebook.com/3ZebraZooPILZ
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Update 14
5 months ago
Yep. The struggle is worse now that both children are diagnosed, I have a permanently broken clavicle and my (ex) husband filed for divorce not too long after this article upon returning from Mayo clinic in July of 2013, knowing there was no cure for me.

God willing I will still find help or spread the word by sharing my Gofundme page is still up from 2012.
My children and I need Eastern medicine to even attempt to survive; let alone thrive.
I just received from DHS that I'm denied medical care because my YEARLY income is $8,800. I'm still the same whatever the Eff it takes.
Still smiling & slowly gaining weight
Halloween 2015
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Update 13
11 months ago
Just had my 3rd surgery in less than 8 months for my other shoulder today. It went well and already feels better to not have foreign objects poking out of my shoulder.
On another note, my children are "officially" zebras themselves now. My only defense for my children is to be able to be proactive on making sure that they have the best preventative programs available to keep their bodies strong in the hopes that they do not exhibit the same level of pain and dislocations that I
have, none of the things that work are covered by insurance. I am hoping to start trust accounts for each child to help offset the costs. As a single parent with invisible disabilities, it is hard to make ends meet any assistance is a blessing to them and me in return.
Hook Plate from clavicle
original plate 12/16/2014 off the bone
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Update 12
31 months ago
Happy Holidays and many blessings to all whom have supported me, pushed me, loved me, and have helped my family over the last year. It is definitely an uphill, lifelong battle but I'm climbing daily. These two pictures show how immensely important everyone's love and help has worked, plus how hard I am working toward my "new normal", picking up my babies for the first time in over 4 years without assistance or a spotter just in case. You have all helped give me the most amazing gift ever, thank you. My wish is that each of you receive all the peace & love you can stand. Merry Christmas!!
The power of help, picking up kids again
Picking up Michael first time 4 years
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Update 11
32 months ago
Elizabeth has been going through a very difficult time physically and emotionally for the last 5-6 weeks. We have new symptoms that haven't occurred before. Very painful burning throughout entire body that feels like the burn from radiology dye, vein engorgement akin to a bodybuilder that comes and goes, along with chest pains. We have had her at 3 different hospitals, 2 new specialists (cardiologist & gastrointestinal) to see why she won't absorb nutrients. We have a new round of surgeries coming up either right before or after Christmas depending on when all her heart monitor information is completed. She's trying to stay as positive as possible but is really scared over these new symptoms. Please keep her in your thoughts and remember...there's no cure for EDS, just maintenance. The need to finish reaching the goal is imperative at this point so we will be announcing when the full auction is ~ just in time to cover holiday gifts :) Please continue to share and support Elizabeth. Thank you all for the support, it keeps her moving.
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Help spread the word!
 195 total shares
Ame Matuzeski
26 months ago
1
1

I am the co founder of a charity called Waves of Hope. We pay for the ticket for people to take the Lake Express to go to distant medical facilities for medical issues they are dealing with. We cover one person, a guest and your vehicle round trip on the ferry. If we could be of help to you please fill out an application at www.wavesofhopemi.com or email me at wavesofhopemi@gmail.com

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$9,235 of $25k goal

Raised by 70 people in 39 months
Created May 4, 2013
LV
$100
Liz VanderZouwen
32 months ago

Although it took way too long to get this to you, here is the fundraiser money from purchases your friends made through Pampered Chef, plus my commission from it, plus a little more for it taking so long! I wish you the best and pray for continued healing for you!

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KS
$80
Kathy Stewart
34 months ago

Hi Elizabeth - This is from a few of your friends at DU. We are praying for you:)

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F3
$500
Final Donor Match ending August 31.
34 months ago (Offline Donation)
D8
$25
Donor match 8/1/2013
36 months ago (Offline Donation)
D7
$50
Donor Match for 7/28/2013
36 months ago (Offline Donation)
ND
$25
Nancy Driscoll-Kurts
36 months ago

Keep on fighting - you're an inspiration to us all. Love you dearly!

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$50
Anonymous
36 months ago
D7
$260
Donor Match for 7/26/2013
36 months ago (Offline Donation)
$10
Lacelyn Hernandez
36 months ago

Praying that all goes well for you and your family. God Bless and best wishes!!!

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DF
$200
Dennis Flansburgh
36 months ago
Ame Matuzeski
26 months ago
1
1

I am the co founder of a charity called Waves of Hope. We pay for the ticket for people to take the Lake Express to go to distant medical facilities for medical issues they are dealing with. We cover one person, a guest and your vehicle round trip on the ferry. If we could be of help to you please fill out an application at www.wavesofhopemi.com or email me at wavesofhopemi@gmail.com

+ Read More
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