Erin's Fight Against Cancer Fund
Our beautiful young daughter was recently diagnosed with advanced ovarian cancer. 48 hours later, she had emergency surgery. She is now undergoing 18 weeks of chemotherapy. She is facing this with immense strength and courage, but it will be a long journey to recovery.
Fortunately, Erin has a wonderful team of medical professionals who exemplify empathy, compassion, patience, and personal concern. Although she has some medical insurance, she will be facing substantial bills due to high deductibles, co-payments, out-of-pocket expenses, and loss of income.
If you are able to donate, please consider contributing to our fund. Erin has experienced the wonderful support of her collogues, students, friends, and family. However, she will need financial assistance through the course of her recovery.
We are so grateful for the prayers, positive thoughts, and encouragement that we have received to far. She looks forward to returning to her music students and her performing life!
A couple of weeks ago I was diagnosed with cancer for a third time. I wrote about it on Facebook and have included that update below for those of you not on social media. I have decided to open up my GoFundMe again because I am currently struggling to make my normal person in life bills, copays and procedure bills from the hospital. My prescriptions and vitamin and food cost are weighing heavily on my monthly income and even with working at the school, teaching lessons and playing at night, I currently have more going out than coming in. Thank you for considering helping me in any way you can. I am truly blessed to have such a loving community.
This is a long update. Some of you have been inquiring about my well being, so I thought I would put this here. No pressure to read on, just trying to communicate. The past two years have been difficult. Despite the difficulties, this time has taught me how truly loved I am. Your incredible support of me during my cancer journey has helped sustain me through some very dark times. My family, music friends, work friends, friends near and far, teachers—you’ve all been an amazing part of my healing. I feel perpetually behind in writing thank you s and trying to convey my gratitude. Your love and support are truly a blessing. Social media was a quick and easy way to connect to my amazing tribe and their support . Somewhere around last spring during cancer 2, I turned inward. I stopped communicating on my page(I decided I’m not versus cancer, I’ve already won because I’m a Survivor) for a lot of reasons—fear of losing gigs, extreme self consciousness about my stupid baldness and generally oldy moldy face, my slowly regenerating brain, on, on and on...
Through much prayer, meditation, long talks with an amazing therapist and and even more awesome priest have helped me to understand that cancer is the great teacher, and by being on this path, I have the opportunity to explore my own issues and come to terms with them. Without cancer, I most assuredly would never have actually dealt with my shit, I’m afraid. I’ve come to understand that the people who respect me will hire me, the people who love me don’t care if I stutter or can’t remember what we did last night for dinner. Mostly, I have begun to understand the importance of self love and self care. My day to day is full of vitamins, exercise, appointments, and fighting like hell to hold down being Ms. Burley to over 450 students, maintaining a humble private violin studio, and whenever possible taking any gig I can do that I can do what really makes me feel like Aeryn Mother Fucking Burley, which is to play my violin in sassy blacks. It’s difficult to try to balance working full time and cancer, and making the bills, and constantly being flexible with readjusting the plan. My control issues sometimes feel like they’re going to ooze out of my nose like pop rocks and Dr. Pepper.
Last March I stopped chemo during cancer two because it wasn’t working, and began a PARP inhibitor instead. It worked for a bit but unfortunately cancer is back for a third round. I started chemo this past Thursday. I don’t know how many rounds there will be. I’m hoping so hard not to lose my stupid hair again. I feel pretty strong mentally and have my best pair of stilettos on for which to kick cancer in the balls.
Thank you to each friend on this platform for your kindness, patience, prayers, meditations, support, financial donations and most of all your love. The true love of family and friends is the most important thing to me.
It’s difficult not to shout at all of you, the people I love, all the things I’ve learned the hard way—eat your vegetables, be kind to yourself LIKE, ACTUALLY KIND, exercise, understand what you are putting in your body, avoid stress because its ACTUALLY bad for you, most of all, despite whatever petty bullshit may arise, draw the people you really live in close and don’t let go.
Thank you for being in my life. Thanks also for your friendship.