Equipment for our Logan

Our beautiful boy Logan who is now 9 was born with a chromosome 1 deletion which wasn't picked up during pregnancy so came as quite a shock when at 2 weeks old following a lot of feeding issues he had his first seizure.  Tests revealed the cause but the way in which Logan would be affected was uncertain.  We have always remained positive and found joy in each of Logans accomplishments but as Logan grew (very slowly) it became evident that he would have developmental issues.  He doesn't walk or talk and is dependant on others for all his care.  We were tested to see if we were carriers of this deletion and we are not.  The best way I can describe it is it wasn't inherited, it just happened and we dont know why. Logan suffers from epilepsy as a result of this and thankfully it is mostly controlled with 3 different medications although he does still have them occasionally.  Logan is fed mainly by a peg which is a tube that goes into his stomach.  He does enjoy a little food (he is unable to drink enough liquid on his own) which is mashed but it can take him quite a while and he soon gets tired, however this is mainly given to him for the joy of tasting rather than nutrition.  When he is sick he refuses to eat at all so the peg has been wonderful for him and us. 



But despite all this Logan is an absolute joy and is very loved by many.  He has an infectious laugh and a beautiful smile and is full of love and gentleness.  Logans favourite things are watching afl, school, swimming and tickles!  He is a cheeky lil monkey sometimes and he knows it.  He certainly makes up for what he isnt able to do (yet) by his huge personality and we wouldnt wish our family to be any different.  Logan has 2 siblings, Ethan who is 6 and Eloise who is 4 and they are so loving and gentle towards Logan.   

Logan is wheelchair bound and is still small for his age, however he is getting bigger, heavier and more difficult to lift.  We have been lucky with the few equipment items we have received through the community however Logan's needs and ours are changing.  We have saved hard to buy our first home in order to be able to permanently add equipment that will assist Logan as he grows but we need help with actually buying the equipment.  Items we will eventually need are lifting equipment (which has since been achieved with gofundme donations and fund raising events) a seat for the shower, a bigger wheelchair and at the moment the most important one is to be able to convert our Kia so it is wheelchair assessible.  This is the biggest expense but the most necessary at the moment.  The government doesn't offer us much financial assistance for these things and when and if they do it is very little with a huge gap we need to find and it can take a very long time to get the small amount they sometimes offer. 
We arent a family that often asks for help, especially from strangers but we realise we need to put our pride aside for Logans sake.  We thank you for taking the time to read Logans story.