Elise's Neuro Therapy
Donation protected
Our precious 19 month old daughter, Elise, has Global Developmental Delay and Hypotonia (low muscle tone). She weighs only 6.8 kilograms (the average size of a 5 month old baby). Developmentally she is still at a 5-8 month old level (over 1 year behind) in almost all areas. This is heartbreaking to us. She is not sitting independently or crawling yet. She does not speak meaningful words, cannot feed herself or drink by herself or put anything to her mouth with her hands. There is a chance that she may never walk without effective, expensive treatment. Her twin brother, Mitchell does not have any developmental delays, and is walking and talking, etc. Her older brother, Arden (5) also has no developmental delays.
Elise sees a regular physiotherapist, Occupational therapist, Speech Therapist, doctors. She has on average 2-3 appointments per week. Despite this, she is still very behind. She is definitely progressing, however very slowly, and there is a very big chance she may never walk or communicate effectively. As an example, we have been working on getting her to build strength to sit up for over 8 months now, and she still has not reached this milestone.
There has been no cause found as to Elise’s Global Developmental Delay (i.e. cerebral palsy), despite numerous tests performed by the Royal Children’s Hospital (including an MRI on her brain and spine). The consensus however by the doctors is that it is neurological, i.e. her brain is not working as it should.
She has a ground breaking therapy available to her based on neuroplasticity (the brains ability to change and forge new neural pathways), via a company called Neuro-Fit Systems, which we need help to pay for and ask for any donations that you can afford to make.
This particularly therapy is not funded by the government or private health insurance. The cost of the therapy is $5,000, and involves an intensive 12 week therapy course. This particularly therapy is one of a kind and is coming to Melbourne.
Neuro-Fit systems offers therapies for people like Elise (and other brain injured conditions), and has had great success. I know of 3 cases personally where what Neuro-fit have achieved for their children is miraculous. One such case is a friend of mine’s 6 year old boy who could not drink from a cup prior to his Neuro-Fit therapy, and following his therapy at Neuro-fit could drink from a cup. After his therapy he could also walk without ankle-foot orthoses, ride a scooter, no longer suffered crippling spasticity of his hands and feet during sleep, was able to walk sideways, able to handle sensory activities he couldn’t before (i.e. touching sand). These are just a few of his changes, and they are due to changes in his brain due to his therapy at Neuro-fit. This brave little boy is 6 years old and has had every available type of standard therapy (physio, Occupational Therapy, etc) since he was 7 months old, and achieved more at his time at Neuro-fit than all of those years of treatment.
The following is a link to Neuro-Fit Systems website. They are based in Brisbane and Los Angeles, and are opening an office in Melbourne later this year.
http://www.neuro-fit.com/
If by chance, we raise more than $5,000, this money will be used to allow me to take time off work from time to time, to do more intensive hands on therapy with her myself. This is also imperative to Elise's development.
Further to the above, the Royal Children’s Hospital also want Elise to have another genetic test, Whole Exome Sequencing (WES), as the last resort of investigations as to why she has Global Developmental Delay. However, the test is also unfunded, and costs $2,000, which we cannot afford, as Elise’s condition has already cost our family thousands of dollars. This particular test only has a 4-5% chance of finding a cure for Elise, however it is still a chance.
Any donations received will be greatly appreciated by our family to help Elise, and we will be eternally thankful to you all. We shall keep you all updated as to her progress once she begins her therapy at Neuro-fit. I, as her mum, know that this therapy will go a long way to help Elise walk one day in the future.
Elise sees a regular physiotherapist, Occupational therapist, Speech Therapist, doctors. She has on average 2-3 appointments per week. Despite this, she is still very behind. She is definitely progressing, however very slowly, and there is a very big chance she may never walk or communicate effectively. As an example, we have been working on getting her to build strength to sit up for over 8 months now, and she still has not reached this milestone.
There has been no cause found as to Elise’s Global Developmental Delay (i.e. cerebral palsy), despite numerous tests performed by the Royal Children’s Hospital (including an MRI on her brain and spine). The consensus however by the doctors is that it is neurological, i.e. her brain is not working as it should.
She has a ground breaking therapy available to her based on neuroplasticity (the brains ability to change and forge new neural pathways), via a company called Neuro-Fit Systems, which we need help to pay for and ask for any donations that you can afford to make.
This particularly therapy is not funded by the government or private health insurance. The cost of the therapy is $5,000, and involves an intensive 12 week therapy course. This particularly therapy is one of a kind and is coming to Melbourne.
Neuro-Fit systems offers therapies for people like Elise (and other brain injured conditions), and has had great success. I know of 3 cases personally where what Neuro-fit have achieved for their children is miraculous. One such case is a friend of mine’s 6 year old boy who could not drink from a cup prior to his Neuro-Fit therapy, and following his therapy at Neuro-fit could drink from a cup. After his therapy he could also walk without ankle-foot orthoses, ride a scooter, no longer suffered crippling spasticity of his hands and feet during sleep, was able to walk sideways, able to handle sensory activities he couldn’t before (i.e. touching sand). These are just a few of his changes, and they are due to changes in his brain due to his therapy at Neuro-fit. This brave little boy is 6 years old and has had every available type of standard therapy (physio, Occupational Therapy, etc) since he was 7 months old, and achieved more at his time at Neuro-fit than all of those years of treatment.
The following is a link to Neuro-Fit Systems website. They are based in Brisbane and Los Angeles, and are opening an office in Melbourne later this year.
http://www.neuro-fit.com/
If by chance, we raise more than $5,000, this money will be used to allow me to take time off work from time to time, to do more intensive hands on therapy with her myself. This is also imperative to Elise's development.
Further to the above, the Royal Children’s Hospital also want Elise to have another genetic test, Whole Exome Sequencing (WES), as the last resort of investigations as to why she has Global Developmental Delay. However, the test is also unfunded, and costs $2,000, which we cannot afford, as Elise’s condition has already cost our family thousands of dollars. This particular test only has a 4-5% chance of finding a cure for Elise, however it is still a chance.
Any donations received will be greatly appreciated by our family to help Elise, and we will be eternally thankful to you all. We shall keep you all updated as to her progress once she begins her therapy at Neuro-fit. I, as her mum, know that this therapy will go a long way to help Elise walk one day in the future.
Organizer
Rebecca Forsyth
Organizer
Melbourne VIC
Inspired to help? Start a fundraiser for someone you know
