Crystal's Scleroderma Fund
My name is Crystal. I have Sleroderma/ Severe Aggresive Systemic Sclerosis. Im a mother of two amazing boys, a devoted nurse for 11 years, and an artist. It's now been 3 years since I was diagnosed with this horrific disease. Scleroderma has taken a lot from me, my ability to walk, my ability to perform my normal daily task on my own, my dignity, my freedom, but I will not let it take my Faith. Over this last year I've been hospitalized 6 times, with these last 2 hospitalizations lasting two months long. I fell and broke my right femur in half and my left wrist. Then 4 days post discharge I was right back into the hospital for a severe bowl obstruction resulting into abdominal surgery and a long recovery. That was some of the worst pain I have ever felt in my life, but I never gave up the fight to live. My boys and family have all been very supportive throughout all of this! My goal is still the HSCT treatment, but as for now, I'm focused on quality and comfort in my life. I'm trying to raise the funds to get me my electric wheel chair and lift. This will not only help me with regaining range of motion and mobility, but quality of life, and freedom from a life of being bed bound. I thank all of you who have already helped so much with my cause!!! I'm still in need of help in getting these 2 pieces of equipment. So, if you can please help me by sharing this with as many people as you can, or give a donation to my cause. Thankyou, so much to all of you, and God bless you!
Your story touches my heart. My prayers go oyt to you. My 9 year old daughter is being treated for scleroderma too. They say hers is the linear kind. It is affecting her right arm, and so far thats all. Is your condition the systemic kind? I hope someday there is a cure...in the meantime, I will pray for you daily, just as I pray for my daughter.
Praying for you and your family! I wish I could do more but I know every dollar counts because I have had to raise funds for my medical condition as well and I wanted to pay it forward in some way. It is so difficult to be away from your children and I hope you can be reunited with them soon! Keep fighting! You are in our thoughts and prayers!!!
Hi, Crystal, I graduated from high school with Natalie Gonella, and got a Facebook post from her a couple of weeks ago telling your story. Every time I think of you and your family, I get a painful lump in my throat. You are beautiful, talented, and loving, as I can see by your posts. I just wish your funding would move faster toward your goal. You are on my mind every day. Thinking good thoughts and praying for a cure.
I'm wondering if a retirement facility might know of some way to get a discounted mobility scooter? Also, have you checked craigslist or ebay? I'm so sorry for your pain, I continue to pray for you. I did forward your story to everyone on my facebook (unfortunately, that's not a lot of people).
Hi Crystal. Blessings to you. Glad you're doing ok for now. While Maria and I continue to keep you in our daily prayers, we also arranged: (1) Mass intention said for your health, healing and recovery on July 20th at a Monastery of Cloistered Dominican Sisters at the Monastery of the Angels; and (2) perpetual prayers for you by the Sisters - that means never ending prayers. We're going to also be sending you a a small package to the TX address you gave us. God love you and keep you strong always. Love Uncle Richard and Aunt Maria.
I'm so glad you were able to enjoy some happiness over the holidays, albeit mixed with some bumps and bruises : o I dated a guy who had a sister with scleroderma. Although I never met her, he explained much of the disease to me and it broke my heart. She was younger than you but I believe it was the same severity. Seeing your video made it more clear to me. Too many people just do not know about it but I found it listed on the top 10 most painful diseases. I pray for you often. I was so sure I would win a $1m lottery so I could pay for your transplant. Obviously I didn't. But I'll try again next time. Hopefully I can help you someday soon.
I love you so much and you are strong , don't let that doctor take away your hope....you are a fighter and your mom and dad are there for you and just hold on to your faith and remember the love you have and the love you receive is going to help you through this....I am here for you so never forget that.
Crystal, Tristan and I say a prayer for you every single night! I will make sure to pray tonight for that miracle! With God all things are possible!