EB Convention

My cousin Taylor is trying to raise money for her and her family so that they can go to the Debra Care Confrence for EB in Arizona.  Her two year old son Kolton has EB (Epidermolysis Bullosa) which is a rare connective tissue disorder that affects 1 out of every 20,000 births in the US.
This convention would be a huge positive opportunity for them, many of the doctors and researchers who know this condition the best will be there. Also a lot of medical supply companies who help with pain and healing for Kolton. The new learning advances on the treatment and care will be there also.
They recieved a scholarship for the hotel and one plane ticket so they just need help on the rest! The money will also go towards any new products that they can purchase at the convention that will help Kolton.

Facts about EB:
Prominate symptoms are extremely fragile skin that can blister or tear from minor friction or trauma
There is no treatment or cure
There is 5 major types and 31 subtypes 
They are often called "Butterfly Children" because there skin is as fragile as a butterflies wings

You can find much more information about EB and the convention at Debra.org 
Please spread awareness!
Thank you for your time and anything can help!!