Help A Mother Save Her Son.
Today was my first time holding my boy since our big day! He instantly feel asleep in my arms. I feel like im holding him for the first time in the NICU all over again. He got his ng tube out today and urinary catheter. He still has his central line because theyre still working on his blood pressure meds but he's getting there. Unfortunately the diarrhea side effect from the cellcept has started but should get better soon.
Not too much happened on Tuesday. His ng tube was clamped and his formula feeds through his g tube began at 5mls an hour. Just for 24 hrs to make sure his bowel was working after surgery. He had an overall great day and gave us so big smiles and hoarse little giggles!
Today, Wednesday, was another great day! Roman had a nice night and his labs continue to look beautiful. He had to have some replacement electroyles of potassium, sodium and magnesium yesterday. After transplant surgery it is very common for vitamins asnd electrolytes to drop because of the bones absorbing everuthing they have been needing! Today they were all within range. He got his ng tube removed out of his nose which he was very happy about, his port needle out and his urinary catheter removed. His feeds are going well and are being doubled every 6 hours until he hits the goal of 50cc an hour. His blood pressure is still low so he is still on the iv dopamine to keep the kidney happy. He was also started on midodrine which will raise his pressure and allow him to come off the dopamine. Once that happens his central line can come out! Hopefully tomorrow. He is looking and feeling better everyday and it is such a dream come true. Thank you so much to all of our followers for the love, support and continued prayers! The power of prayer and positive energy is miraculous!!
Love and Prayers Always for Sweet Roman, his brave Mommy ,his Wonderful Daddy and all his loved ones!!! Stay Strong and Always Believe!!! :-) ♥
Romans' father is a very special person, I hope and pray for the best for this innocent child and pray for his parents. I love you Robert, God Bless.