Open Heart Surgery

$9,355 of $20k goal

Raised by 97 people in 31 months
So the story begins four years and some ago when we welcomed our beautiful 9.87 pound baby chicky, that date March 16th 2010, would forever change our lives for the better! Cole handed our baby, Kylee Graham to me when I woke up from the recovery room for what felt like a few seconds but actually was probably quite a few minutes before the nurse told me she had to take her back because Kylee was not able to stabilize her own sugar so she had to go to the NICU. Few days later Cole along with a nurse escorted Kylee through Norfolk General to CHKD to see a cardiologist for concerns. Every child has a hole in their heart that typically closes but Kylee's did not, she also had a severe heart murmur which is quite common but then they diagnosed her with Aortic Stenosis. That condition in common terms is best defined as follows: The aorta is the main artery carrying blood out of the heart. When blood leaves the heart, it flows through the aortic valve, into the aorta. In aortic stenosis, the aortic valve does not open fully. This decreases blood flow from the heart. So before leaving a week after she was born we were told we would follow up every 6 months with the cardiologist. Fast forward to April 2014, we go in for our routine check up and find out that they found a secondary issue called subaortic membrane which is a fibrous membrane below the aortic valve that may involve the ventricular septum, the anterior leaflet of the mitral valve, and the aortic valve itself. At this point we agree to come back for a check in 3 months because there is no physical symptoms that would aware us that the condition is getting worse without doing an echocardiogram. This Wednesday, August 13th at our appointment, the doctor explains that she has a minimal back bleed. He meets with the Board of Surgeons who all agree it's time for surgery. Did I mention that this condition is rare in children and has not been surgically handled just everywhere. So it's time for surgery and I will be bringing Kylee Graham to Boston Children's Hospital to have her surgery but I need help. So please donate to a fund to help get her there and get this surgery by the best of the best cardiac surgeons!  Kylie will be going to Boston on the 19th and will most likely have surgery on Sept 22.
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Update 4
Posted by Brian Duval
30 months ago
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Kylee in good hands at Boston Children's Hospital.
Kylee resting after surgery.
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Update 3
Posted by Brian Duval
30 months ago
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Kylee's surgery was a success, the tissue surrounding the aortic valve was removed and the valve is operating with minimal back flow. Dr. Amani, the surgeon was amazing! He did not have to break the rib cage; he was able to go round the ribs. The staff at Boston's Children Hospital are truly amazing. As a result, her recovery is going very well and we anticipate her release this weekend. The money raised has been very helpful and has put Jen and Cole at ease with the expenses incurred for housing and the deductibles/out of pocket expenses they will inherit with the surgery. From the bottom of our hearts, we thank you for your prayers and support.
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Update 2
Posted by Brian Duval
30 months ago
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Family and friends, we are very thankful for the generous donations, prayers and personal stories! Over 564 shares with over $6K raised to date please continue to share among friends. Thank you!

Jen and Kylee leave on Thursday for Boston for their appointment with the surgeon on Friday. We will keep you posted. Once again, Thank you!
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Update 1
Posted by Brian Duval
31 months ago
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All, Thank you very much for the support! I know Cole and Jen are very grateful.
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Read a Previous Update
Kit Blei Ballance
30 months ago

She looks precious! I'm saying prayers for a speedy recovery.

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Katrina Igler
30 months ago

My son was born 3/16/10, as well! My prayers go out to you all as you navigate this stressful time. I'm sure she will get through this without a hitch and be up and playing before too long!

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Cody Agnese
30 months ago

Our thoughts and prayers go out to you and your family!! Boston's Children's Hospital is one if the best in the country! My little girl now 11 was born with aortic stenosis too but hers was very bad, so after trying to do a balloon to open it to function normally we flew her up to CHOP in Philadelphia where she has undergone three open heart surgeries. She is now treated as Hypo-Plastic Left Heart. She made it through these surgeries at 11 days, 3 months and 3 years old, I know your daughter will do great and come out stronger than ever!! Never loose faith and always know miracles do happen!! It happened for us when they thought my daughter was not going to make it after her second surgery and she has stunned the doctors ever since!!! May God Bless you and your Family!! Also try to stay at the Ronald McDonald House they are a tremendous help and costs much less during this time of need.

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Jenifer Peake
31 months ago

Again thanks everyone for your helping hand to fix Kylee's beautiful heart!

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$9,355 of $20k goal

Raised by 97 people in 31 months
Created September 4, 2014
$10
Kylie Clark
20 months ago

What a sweetheart. Best wishes!

LP
$15
Laura Peterson
28 months ago

Best wishes to you and your parents for a speedy recovery, Kylee, and many happy and healthy years to come. Boston Children's fixed my heart, too. Go Kylee!

GV
$10
George Velasquez
28 months ago

Keith Center brought me here. May this and all other donations bring you through to fulfillment on this!

SB
$100
Stefan and Collen Booth
28 months ago
$10
Kathi Rowe
28 months ago
SC
$10
Stacey chapman
30 months ago
BR
$50
Billy and Heather Rosewarne
30 months ago

So glad to hear surgery went well!

VS
$100
Vickie Stamper
30 months ago

Hope to see you soon! Love you! Eddie & Vickie and family!

MC
$50
Michael Colangelo
30 months ago
FB
$200
Frank Blankemeyer
30 months ago
Kit Blei Ballance
30 months ago

She looks precious! I'm saying prayers for a speedy recovery.

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Katrina Igler
30 months ago

My son was born 3/16/10, as well! My prayers go out to you all as you navigate this stressful time. I'm sure she will get through this without a hitch and be up and playing before too long!

+ Read More
Cody Agnese
30 months ago

Our thoughts and prayers go out to you and your family!! Boston's Children's Hospital is one if the best in the country! My little girl now 11 was born with aortic stenosis too but hers was very bad, so after trying to do a balloon to open it to function normally we flew her up to CHOP in Philadelphia where she has undergone three open heart surgeries. She is now treated as Hypo-Plastic Left Heart. She made it through these surgeries at 11 days, 3 months and 3 years old, I know your daughter will do great and come out stronger than ever!! Never loose faith and always know miracles do happen!! It happened for us when they thought my daughter was not going to make it after her second surgery and she has stunned the doctors ever since!!! May God Bless you and your Family!! Also try to stay at the Ronald McDonald House they are a tremendous help and costs much less during this time of need.

+ Read More
Jenifer Peake
31 months ago

Again thanks everyone for your helping hand to fix Kylee's beautiful heart!

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