#DontgiveupJD

Please Help - Donate, Share , Pray !! Prognosis is grim !! Before 1st August 2017, I didn't even know what these words exactly mean but since then I have heard these very words were spoken to me countless times by many medical professionals. The tragedy struck our happy family on 1st August 2017 when my husband Jyandeep (Age 38, also known as JD among friends and family) drowned in the pool in the backyard of our very new house. On that fateful day, Jyandeep was working from home and during his break he decided to take the girls ( Age 7 and 2 ) for a quick swim in the pool. What exactly happened is all blur as just the girls were with him . JD was not an expert swimmer, he just drowned. The little girls had no idea what was going on , why their Daddy is in the bottom of the pool. As soon as my 7 year old sensed that there is something wrong, she called me at work and i was able to call 911. When the first responders came,  Jyandeep had no pulse , no breath. But with God's grace they were able to resuscitate him.  What followed next was beyond my worst nightmares. JD had sustained massive Anoxic brain injury and was in induced coma for 18 days and any attempt to bring him out of it were failing. The doctors said his chance of making it were not even 1%  and were asking me again and again to "Make a decision".I decided to place our lives in the hand of God and prayed to him for a miracle. On Aug 18th 2017 , while on ventilator and in coma ,he was moved to another hospital not far from here and his medication for induced coma were stopped immediately. By God's Grace he opened his eyes and looked at me on 26th August 2017. I can never forget that moment- so full of hope for us. Even after opening his eyes, Jyandeep remains in vegetative state till date since there was a substantial tissue loss from his brain. He was moved to an acute rehab and then to a nursing home, where he currently resides. Jyandeep got critically ill again in Jan 2018 and Jun 2018 when i thought i lost him but God saved him both times. Prayers of our loved ones and the blessings of God are why we still have him to love.  Currently, Jyandeep resides in a nursing home near us which gives me the ability to visit him everyday and spend time with him when the girls are at school. He has no purposeful movements but he opens his eyes spontaneously and also look at somebody when they speak to him . His greatest reactions come when the girls visit him in the evening and weekends. He seems calm and happy. I was able to bring him home on his birthday for a little celebration and for the first time since that fateful day, i saw couple of tears roll down his eyes, he looked happy to be home , even if it was for couple of hours. No matter what the doctors and therapists say, he is there and he is NOT like a vegetable. The next step in his recovery would be to bring him home and surround him with love 24X7. The hugs and kissed from the girls and the constant chatter may help in his recovery. This will prove to be very challenging as i don't have any family around to help. To be honest, i am super scared. With faith in my God to give me strength, i am working towards it and getting trained on all the aspects of his care so that i can take care of him at home. The most challenging part for us would be the financial sustainability for the next 2-3 years as i want to be with him at home taking care of him and helping with his recovery. There would be no sense leaving him with a nurse while i am out for 8-9 hours working. My decision to not work for next 2-3 years might be good for him but it is a crazy decision to make financially as I have a mortgage and medical bills to be paid apart from making sure our 2 little girls are well provided for.  For his past bills, I had applied for Medicaid assistance from the State of New York in Jul 2018 and was hoping that the Medicaid would pay the bills for Jyandeep from April 2018 onward but their decision is to start from April 2019. This has left us with an year worth of unpaid bills totaling over 160K USD to be paid, mostly to the nursing home. There are two lines of treatment that I am considering for him in the near future - HBOT ( Hyper Baric Oxygen Treatment) and Cold Laser but they are not covered by insurance . Although there is no literature validating the efficiencies of these treatments in brain injury, there have been stories of significant recovery for other patients in similar situation. Each of these might cause upwards of 20K USD. I am requesting you to support our family in these difficult time and help raise 300K USD to help pay his past medical bills, try new medical treatments not covered by insurance, make home modifications and get necessary medical equipments to bring him home and help us sustain over next 2 years or so. Jyandeep and God have teamed up to defy the medical prognosis again and again and i believe that my miracle will come over time.    With Love and Faith in God, Nandna