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Donation for Bone marrow transplant

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I am  S RaghuKumar(Brother of S Ravi Kumar).My son  S.Sai Varshith aged 9 years is diagonised with Juvenile Myelo Monocytic Leukemia(JMML)in which the hemoglobin levels go down below normal and platelet count goes very high(20-40Lakhs)almost 7times to our normal levels. It was detected by birth,then onwards he is on blood transfusions frequently at Mazumdar Shah Narayana Hospital, Bangalore.
He is under medication till now to suppress JMML temporarily. In the month of June 2017, he was hospitalized due to brain infection(meningitis) and respiratory distress and was put on ventilator. Due to this doctors strongly suggestted, not to prolong more on medication to suppress JMML for long time. More medication may cause various side effects.
Per Doctor at Narayana Hospitals- Mazumdar Shaw Medical Center, Bangalore, The curative treatment is Bone Marrow Transplant,
Unfortunately no fully matched donor in the family or unrelated donors. We decided to go for Bone marrow transplant using TCR alpha/ Beta and CD 19 depletion using one of the parents as donor(haplo identical). The cost of carrying this transplant is 32 to 34 lakhs excluding cost of any further complications. Till date, I have spent nearly Rs.30lakhs towards treatment,diagnosis and investigations.

I have been trying TO RAISE MONEY through various means but am finding it a very big challenge to arrange this huge amount. Whatever I had saved has been spent for this treatment.I make a heartfelt request to kindly help us in treating my son. I shall be greatly indebted.

Organizer and beneficiary

Archana Gopal Bhagyalekshmi Ammal
Organizer
Bethesda, MD
SAI VARSHITH S
Beneficiary

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